Psa

It can reach the thousands for patients who are diagnosed with metastatic disease.

Rob

Thanks Rob. I should of introduced myself first. But my head has been somewhere else. I am Paul 60 years of age with the dreaded disease. I've had my prostate removed las well as the seminal vessical's in October last year. Now my PSA is rising again in 16 weeks its gone to 1.4. Now im told after pet scan that it is either in my bones or lymthnodes. I was a gleason 4+3 now im told im gleason 9 by adding all the other factors.The reason I asked the PSA question , is that im feeling ok in myself, so really don't want to go on meds and feel that im loosing some of my quality of life that I have now.

Hello Nobody1b4d4af 

I can understand your thought process here - my thoughts on reading your posts are:

* You have had surgery - the prostate's gone but there's a spread. I think it's a bit vague to be told 

Nobody1b4d4af said:

it is either in my bones or lymthnodes.

It's very important you find out if it's in your bones or your lymph nodes or both and just where in your body as this will affect any treatment plan.

* Gleason 9 is an aggressive cancer and it needs to be delt with ASAP before it spreads any further.

* My last PSA test 2 weeks ago was 27.5 - I felt fit and well too and really didn't want to go back on treatment BUT - I love life, my family and my grand children and I intend to be around to watch them grow up. The side effects of treatment I can deal with - you only get one life.

Personal opinion you need to accept any treatment offered before the cancer gets to a point where you become un-treatable.

I hope this helps - do come back to me with any questions.

Best wishes - Brian.

Hi N

I agree with everything that Brian has said but one more thing

If in nearby node(s) then still potentially curable , not so if in the bones.

So Def worth finding out exactly where and if in nodes , how many.

If in nodes then starting on HT asap to hold it back further, then some RT, could sort it

Best wishes 

Steve 

Yes I will get more answers from the oncologist in a few weeks. I've just had my last chat with my urologist before I start my next chapter. He explained to me in his experience the rapid rise of the psa sugest its not in the bed where the prostate was, its more likely to have moved either to the lymthnodes or bone. I've had 2 x psma pet scans and both inconclusive. 

Hello Nobody1b4d4af 

I think I would be pressing for an Oncology appointment as soon as possible. If you can't contact them direct try your hospital PALS office (Patient Advisory and Liaison Service) Tell then you have an aggressive cancer - Gleason 9 and you need an urgent appointment.

I know where you are with inconclusive scans - i had one a few months ago and was re-scanned last week - awaiting results.

Best wishes - Brian.

You are right to ask about PSA numbers but don’t get to hung up on the actual number, but think about the trend that the numbers are taking - up or down. If it going well the numbers will fall but if the numbers are rising there is likely a problem.

My PSA went up to 712 recently and the trend is now downwards and has fallen to 352 so I’m happy.

The other forum members will add more but keep asking questions. It’s the only way you’ll learn. Also, this is a safe place so relax.

We are here to help. Good luck and take care.

Hi Rob (Sandberg ), just an additional comment that it seems possible to have a very high PSA (thousands) also without any metastatic spread. So a very high score indicates a spread but appears not to be certain.

Hi, With my condition T3b, Gleason 9 is it possible for me to claim PiP ? Or some kind of support. As I am 60 years of age and with my kind of work that is very physical. Can't see me doing it once I go on treatment as im struggling now.

That depends on your financial status your health and many other things.

Have you spoken to the MacMillan advisors? The first one will go though the credit possibilities you have thoroughly. So I would start there. They will give you an assessment and from that some advice.