Leaving primary tumor

Hi Jim. There's usually no point in removing the prostate when your cancer has already spread my friend. ADT, followed by RT/Chemo"maybe both", will be much more effective. I too am Gleason 10 and had mets in 5 organs and 7 lymph nodes, after treatment cancer was only detectable in 1 node, so a very good treatment 

Eddie 

Eddie had a look at your bio omg you have been through the mill. Have you had pmsa pet scan .how old are you now . Are you able to work. I am waiting on consultation 4 September 2025. Off sick at moment will make call after meeting regarding work 

Hi Jim, I'll be 60 in a month. I'm retired, 1 year before diagnosis and could work if I  wanted to, I've had 1 PSMA PET CT in 3 1/2 years, though not really relevant in MY situation, 8 weekly PSA's & MDT meetings are sufficient. Is your appointment at the Beatson?, it's an excellent hospital and hopefully they'll have the answers your looking for.

Eddie 

That’s good you have retired all your focus can go on your health I hope you are still enjoying life. I hope for a pmsa pet scan as I only have one distant lymph node in rectum would confirm or deny metastasis. Trying to think about retirement early or carry on working 

Life's different my friend, but I'm still enjoying it and plenty of holidays, we're 7 down with 5 to go for the year, and hopefully a few weeks in Australia just after Christmas, sorry you may have lymph node involvement in the rectum, I had 2 mesorectal nodes infected, and an unrelated beninge rectal tumour which were all treated successfully, as for retirement I've never regretted it, but we're all different, but  listen to your body and follow your heart.

Eddie 

.Hi Eddie sounds as if your having a ball and not letting your cancer journey stop you.that’s exactly the term mesorectal on mine they hinted it would be hard to target as risk of damage how did they target yours

Hi Jim, as I had quite a few metastesees  to the lower pelvic area, the whole area was targeted with radiotherapy RT, with a very high dose of radiation 75 gy over 20 cycles, though the EBRT machine is able to be programmed to minimise damage to the most vital areas, there is damage to healthy cells, but as we say they will recover, the cancer cells won't, and being positive is so important my friend, a young girl summed it up when she said, I  have cancer,  cancer doesn't have me. 

Eddie 

Cheers eddie