Hi all
We received the results of my LH's biopsy this morning.
He is Gleason Score 9 (4+5). GraDE GROUP 5. Not what we were hoping for.
There is cribriform pattern present.
On the right side of 13 cores taken 10 were positive, maximum right core length involved 17mm. On the left, of 5 cores taken 4 were positive, maximum left core length involved 13mm.
Extracapsular spread: No.
They have requested a PSMA -PET scan in order to complete the staging. The wait for this is likely to be 3 weeks. We go away for a week in just over 3 weeks (within UK). She said that we should still go and if an appointment is offered while we are away then to explain and ask them to reschedule.
On the positive side we now have a Keyworker and a direct line to contact her so that is something I suppose.
Feeling pretty down atm.
D4Me
Hello Dogs4me
Well you have got the results and as Gleason's go it's the lower of the 2 9's (4+5) and not (5+4). You also have a direct contact within the urology team so that's something.
There are plenty of members of the Gleason 9 club on the group still going strong (I am a Gleason 9 (5+4) and into my 4th year and I feel great - at the moment enjoying 5 weeks in Turkey with my family 
).
Think of the holiday coming up and you are one step nearer a full diagnosis and a treatment plan.
Best wishes - Brian.
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
Strength, Courage, Faith, Hope, Defiance, VICTORY.
I am a Macmillan volunteer.
Hi D4me, a big step forward on this diagnostics pathway with the pathology sorted and a named contact as a bonus. Hopefully the PET scan is the last hoop to jump through before getting onto the treatment pathway. You’re getting there
I hope you have a good holiday (We’ve still got 10 weeks to wait for that! ) and that you can relax a bit.
