Received Biopsy Results

Hello Dogs4me 

Well you have got the results and as Gleason's go it's the lower of the 2 9's (4+5) and not (5+4). You also have a direct contact within the urology team so that's something. 

There are plenty of members of the Gleason 9 club on the group still going strong (I am a Gleason 9 (5+4) and into my 4th year and I feel great - at the moment enjoying 5 weeks in Turkey with my family ).

Think of the holiday coming up and you are one step nearer a full diagnosis and a treatment plan.

Best wishes - Brian.

Hi D4me, a big step forward on this diagnostics pathway with the pathology sorted and a named contact as a bonus. Hopefully the PET scan is the last hoop to jump through before getting onto the treatment pathway. You’re getting there

I hope you have a good holiday (We’ve still got 10 weeks to wait for that! ) and that you can relax a bit.

Hi Dogs4me

As Brian has said  4/5 , not a 5/4, so that's a plus

But perhaps the most important thing here is that still contained cos that does make things easier .

Hopefully PET scan will be clear.

So next thing is to start treatment, have they started talking about that yet.

Possibly HT and RT could be the best bet although surgery obviously there as well I presume.

So things don't look too bad so have a good break.

Best wishes 

Steve 

Hi Dogs4me the PSMA PET will tell you all you need to know.  At this early stage I agree with Grundo : RT and HT would probably be the best treatment. Cribriform, plus a Gleason 9 , is likely to want to spread (hopefully it hasn’t yet, but even a PSMA PET won’t pick up micro mets).  So a really strong attack (wide as well, throughout the pelvic area) would kill all the cancer . This treatment could be called “throwing the kitchen sink at it “.  Gleason 4-5 eh?  Well, a dead cancer cell is exactly that.  Dead.  Take a look at my profile (you may have already done so).   AW

I second that.

I had much the same diagnosis, which was just breaking out.

My oncologist that I was going down the curative route, that I was going to have 6 months hormone therapy to shrink everything (it did that!) and then 37 weeks of radical radiotherapy to kill all the cancer. There would then be more hormone therapy to take me out to 3 years worth.

If there was anything left alive after that she said they would kill it with something else.

I've  now had the radiotherapy and if I hadn't hurt my back I would feel brilliant.

My PSA is down to 0.05 which the oncologist said was very good.

So turn your vision to a future which is likely to be longer than you are thinking now.

mstev2 said:

then 37 weeks of radical radiotherapy

Just to reassure Dogs4me - he means 37 daily doses of radiotherapy . Sorry, mstev2 , thought I’d better correct your post !   AW

Thank you Brian. Have lovely holiday!

Thank you.  Feeling little better today - was really down yesterday but, as you say at least we are a step further along.

Thank you Steve.  I think LH would choose HT and RT over surgery if it is offered.  One thing that confuses is me is what are they actually looking for with the PET?  I realise that they are looking for spread but are they looking for local speed that the MRI has missed or are they looking further afield?  Is it possible for it to spread further afield without breaking out of the prostate locally?  Sorry if thus is a very silly question.

Thank you AW.  As I have replied to Grundo, I think LH would opt for HT and RT if it is offered.  Also as I said to Grundo one thing that confuses is me is what are they actually looking for with the PET?  I realise that they are looking for spread but are they looking for local speed that the MRI has missed or are they looking further afield?  Is it possible for it to spread further afield without breaking out of the prostate locally?  Many thanks