We've just had a call from one of the specialist nurses after I involved PALS. I thought it was a bit mean of them to put her in the firing line when she was not able to deal with the larger issues of delay and poor/contradictory communication.
However she did give us lots of information. She said that he has prostate cancer confirmed by biopsy. Interesting that he was told 4 weeks for the results, but they were through in 10 days!
His Gleason score is 4 + 3, one lymph node is affected and the lesion in his pelvis is described as "equivocal but suspicious" although she wasn't sure what will be done about that. His case will go to MDT on 01 August, delayed one week by the junior doctors' strike, and we will get an appointment with a Urology consultant at some point thereafter.
She was as sure as she could be that his gait and balance issues are not connected because there is nothing on the MRI or the full body scan to suggest that and she's happy for us to tell the neurologist that tomorrow when we see him.
It still doesn't alter the fact that we are 10 weeks and 2 days (72 days) into what was sold to us, and no doubt others, as a 28 day faster diagnosis pathway, but I think we can now see something of a way forward.
Thanks as always for your support
