Hi, any advice welcome.
I am a long term member of this group, so seasoned to PC and all it brings with it. But recently my Husband BW came off Abiraterone, he then came off Prednisolone slowly to minimise the side effects of withdrawal and finally finishing two weeks ago. He also decided to come off Medroxy Progesterone Acetate- (hot sweats) as why not? Now he's in a hot mess, literally. sweating profusely, not sleeping and has constant joint pain. The one drug he is still on is Zoladex three monthly HT implant.
This is where I'm really starting to be concerned, for the last week he's been having constant hip pain that no amount of over the counter pain relief is addressing. He goes to the gym twice a week, but when walking into town yesterday (half a mile at most) he was struggling and he was breathing heavily on an easy walk. This has never happened before and it scared me.
Obviously lots of thoughts are going through my mind.- Apparently the pain is the same as before he had treatment (RT) and clearly the steroids have been masking it. Obviously he needs to retake the meds for hot sweats. I want him to phone and get an appointment, but he's not willing to do it -yet. I mean why would he when he can worry the S*** out of me for a few more days. He was told that he would suffer side effects of coming off these drugs, but he seemed to have them early on, now they seem worse . with the hip pain/out of breath.
Anyone had similar side effects??
Lorraine
Hi Mr U Thank you for getting back to me. No pain across chest or dizziness.
Yes the hot sweats are ridiculously full on, but he can retake his meds and they will be gone. He's always tired like you, nap naps all over the place. AKA power naps. it's the sudden loss of fitness that's quite worrying. I mean it's obviously the loss of steroids, after two and a half years of taking them it will have an effect. I was wondering if its a natural progression of age and feeling aches and pains, because in a way he's been so drugged up for the last two years, that maybe this is just age and getting older? (hidden by drugs) Also I sometimes think we have a weird relationship in that I'm a worrier and he's like a big kid. He tells me he feels unwell - I worry and over think- while he goes out for a game of golf with his mates. Mission accomplished full on attention. 
I think it's the side effects of no steroids. I would like to know if theres any Prednisolone men out there that have come off.
Can't speak to this personally because I have not been on the medication, but the NHS says this about steroids:
Stopping taking some steroids suddenly can cause symptoms such as:
If you were taking a steroid medicine to help with the symptoms of another condition, these symptoms may also come back suddenly.
That can be found on https://www.nhs.uk/medicines/steroids/
Some of those items sound a little familiar from your post.
If it is, then it may be a waiting game.
I have to say that I AM on Zoladex, and there are hot flushes.
Sometimes I get days with mini-hot flushes ("flushettes" in my mind). Other days, well, hugging is off.
Oddly, I have come not to care about them. I see each one as the medication working and cancer cells going hungry. I take it as a win.
There is also weariness when engaging in anything that requires effort, but that may also equate to the pregabalin which I am taking to mitigate the pain through spinal stenosis which is going through a flare up.
Given the heavy breathing thing, I would persuade him to go to his GP and ask about it. Or drag him there kicking and screaming.
From what you have said, good luck on that one.
Keep smiling, it makes people wonder what you have been smoking. 
Steve
Changed, but not diminished.
Thankyou mstev2 Steve.
That’s very helpful. I will certainly put the pressure on. We are going to the Lakes for a holiday soon and we usually walk miles, so the challenge will be on! 
Absolutely smiling - first stop Lakes Gin -large
