Jump from "New here say hello" to "Diagnosis and treatment"

Hello KJ911 

It all sounds good to me - you have a plan, 2 years HT a dose of radiotherapy and as it's a "curative pathway" you just need to adjust to the "new normal".

Stick with us - ask any questions - you will be fine.

Best wishes - Brian.

Thank you Millibob  Brian - On reflection I do feel so much better following the consultation. I am just impatient.

Hello KJ911 

The Prostate Cancer journey isn't a sprint - it's a marathon!! 

I was like that at the start - let's get this thing over and done with - and here I am 4.5 years later still battling the little sods!!

Best wishes - Brian.

I felt a lot better once there was a plan. 

When reading your post, the idea of how the cancer cells must feel came into my mind: 

"Where's all the food?"

"I'm hungry!"

"Why is it hot?"

"I don't feel so good...."

I am sorry about my slightly weird imagination. 

Your plan will proceed and the odds are you will be looking back at this one a few years and marveling at the science that got you there.

Hello, thanks for sharing, we are awaiting diagnosis and reading everyone's stories has been really helpful to give us a bit of knowledge around what to expect. 

I read your profile and I do feel alittle worried, your psa level rose quite a bit in a short period of time but I realise you have an aggressive form of the wee fecker. My partners level was 134 when we received blood results nearly 2 weeks ago, we have had a bone scan and have urology appt on Wednesday, we are expecting to wait at least the Scottish 62 day wait from referral to treatment, maybe alittle longer.....now I am worried about what if his levels rise alot in that time, should I be worried? I know in general PC is slow growing. Maybe too many what if's going around my head

Polly1912 Morning and my heart goes out to you... the emotions, worry and concern that you are currently feeling. I assure you they do settle in time.

My PSA gave me huge cause for concern when reading other P:C sufferers' accounts. Some dreadful diagnosis with elevated levels of 6 and there is me at 32. I was terrified. I had two biopsies taking 26 samples in total and my PSA increased. Some say that the biopsy causes an increase, my UK Urology consultant said that the biopsy made little difference.

Following all of my tests, MRI, bone scan (clear thankfully), biopsy x2, I was commenced my hormone treatment. Another 8 weeks to see an Oncologist, who said he would not commence RT until at least 3 months after the injection, to give it time to do it's magic. I have questioned re my high, at least to me me high PSA level and its significance, it's an indicator that is considered with all of the other results. My initial Gleason score was 6 (3+3) but because the PSA was high, they requested a further biopsy and now it is 7 (3+4). 

I await the results of Friday's bloods to see if my PSA has dropped as my Oncologist predicts.

I feel as if I am rambling. My PSA caused/causes me huge concern, however, the other results are equally important, it had/has not broken out, it is not in my bones. But there is a worm in my head that just causes utter panic at times.

I apologise for the typing, it's early and my eyes are struggling. Please give it time and take one hurdle at a time. Stay strong for each other. This is a torturous path that I could not navigate without my wife.

Kevan