QUE SARA SARA

Hello Everyone

UPDATE:

So PSA Test yesterday and consultants meeting today. 

My PSA hasn't doubled in 3 months - it's quadrupled to 27.5 . What's more my eGFR (Kidney function) has dropped 10 points in 12 months from 61 to 51  so the plan is:

* Start back on 28 days of Bicalutamide today.

* In 10 days (ish) a 6 monthly Decapeptyl injection (Hormone Therapy).

* Rescan to see just where the little bastards are on holiday (in the next 2 weeks).

* Appointment with GP practice pharmacist to see if I have a medication clash as I am also Type 2 diabetic, to find out the reason for the reduced eGFR.

* As I had issues with weight gain on my original 3 years HT Consultant has advised GP practice to sort me out with a weight loss jab! .

* HT isn't for life, to be reviewed on a regular basis with the intention of me having a HT Holiday when possible.

* Next Consultants meeting once the scan results are in.

Considering I started this journey almost 4 years ago, with a PSA of 182. a Gleason 9 (5+4) and an eGFR of 8 I knew this was on the cards. Mentally I am ready for the new challenge - to quote Chumbawamba:

"I get knocked down, but I get back up again, You're never gonna keep me down".

Kind Regards - Brian.

Oh, Brian - not the news you wanted to hear but it sounds very much as if your oncologist is all over this and is acting very proactively and in your best interests. How are you and Lorraine feeling and coping with these latest developments? I send you both love and  hugs and hope you can, as you say, quickly get back up again. X

What a fighter you are Brian and what an amazing attitude and fighting spirit. We’re all with you and here for you. With warm wishes always, John 

Sorry to hear that you not having great news Brian , you go above and beyond for people on here all while dealing with your own diagnosis 

I wish you all the best going forward sir 

kind regards

Nick

Best wishes Brian.   Keep your positive spirit  Simon 

Thinking of you Brian. It is definitely a roller coaster ride. 

All of the best.

Hello Worriedwife 

I feel great - I have direction, a plan and I know where I am with this. In the big scheme of things we expected this from day 1 (lifelong HT was mentioned at the start).

Lorraine was a little shocked, but we had already talked about the "what if's" and it could have been much much worse. Like me Lorraine now has a plan and we know where we are going.

Life is good for both of us - I am 70 next month but we are still both very mobile and have a very active life - and this little set back isn't going to mess with that.

Thanks for your support - it means so much.

Kind Regards - Brian xx

oh it’s not the best news you could have but you have a plan and it sounds like your team are being proactive so find out where the pesky cells are and then hopefully a plan to eradicate them. All the very best x

Hi Millibob - writing this - literally - from an Alm high up in the Austrian mountains.  Let’s face it, this isn’t your first rodeo and you & I were both expecting this type of news (although after seeing the quadruple figure, I’m glad to see you imminently back on bicalutamide / HT.  Bigger picture: you’re not going anywhere as you respond well to HT.  Must dash, as clients have finished their apple strudel and we need to push on.  I’ll PM (WhatsApp) later. Great attitude as always - you’re an inspiration to others.  AW

Hi Brian

I am sorry to hear that you had those numbers but it is fantastic to hear you have a plan and such a positive attitude...You sound like you are in the best of hands.

Hugs and love to you and your family x