Coming off Abiraterone, what a shock!

Mr BW is coming off of Abiraterone to see what happens. It's a bit of a shock because he was on it for life, but a few things have happened lately apart from feeling like complete S**t sometimes. He's suddenly developed cataracts in both eyes, he doesn't sleep well, his bloods bounce about and he sports a yellow cast to his skin, ( sometimes he looks like a very unwell man)  and the side effects of such a heavy drug load sometimes feels like he's surviving rather than living. To be fair he's got kind of used to it, mainly because there didn't seem to be an alternative. 

The plan is- finish the box that he is halfway through. Stick with Zoladex three monthly injections ( so still on HT) for another year.  Halve the steroid Prednisolone to 5mg for six weeks and then come off.  So in a couple of months he will just be having Zoladex 

This is how it will go -

1.  His PSA will jump and then level out and stay steady. (would be amazing) Or…

2. His PSA will jump and keep slowly rising = monitor closely. Or…

3. His PSA will dramatically climb and he will go straight on the ":scanner"  hit it hard with RT and go back on Abiraterone.

We are both wobbly about it, but also really interested as to what will happen, if the PSA holds it will mean that his quality of life will improve and dare I even hope that the extensive RT and Ht could point towards that fine line of curative??? Getting a bit ahead of myself I know, but I do believe, "where there life there's hope" and as we all know the positivity of hope carries us forwards.

Anyway, like Alwayshope has done I will update this thread on what happens, good or bad for anyone that is interested.

All the best to everyone here

lorraine