Hi, my hubby has prostate cancer, gleeson 6, tmn 2, saw surgeon who recommended that my hubby had his prostate removed, even though it's not aggressive, the surgeon said there were lots of positive biopsies. And because my hubby is 49, he didn't recommend active surveillance, as he didn't know how quickly it would spread with it being all over his prostate. Advised against radiotherapy as he said he would get bowel and or bladder cancer by the time he's 70 as it destroys these. Suggested seeing radiotherapy consultant to way up options & then decide what we'd like to do. He'd use Da-vinci robotic surgery method. His major concern is sexual function afterwards, surgeon advised that nerve damage is less because of robotic surgery, so this would avoid any ED. A little overwhelming. Any thoughts from anyone who has had the surgery?
Hi Bobblejes
I haven’t read your other thread, but my first instinct on reading this one is get a second opinion- somewhere like the Royal Marsden. Gleason six gives you plenty of time to look at all the options available, there’s no immediate rush.
Hope that helps.
L
* A surgeon specialises in surgery, as he says . “He doesn’t know’ how quick it will spread. You need more information not guess work.
Hi Bobblejes . In addition to the information on your other thread I have attached an information sheet from one NHS trust which gives more details on the procedure along with statistical outcomes.
Hello Bobblejes I had robotic prostatectomy in 2021 and it worked initially but cells found outside a year after, the mental impact of losing sexual function is a massive blow to any active male and do agree with getting second opinions. I felt pressured and made my decision quickly and should have sought more advice not that I would have not had surgery just needed more guidance on the after process, all the best going forward.
Hi, thank you so much for your reply, could I ask what your gleeson score was & whether it was low grade or aggressive and how long after diagnosis did you have it removed?
Hi Bob, my score was 7.2 and the operation took place very soon after diagnosis about 3 months i think my regret is not talking or researching the journey enough. Not that I would have done anything different as cells were contained within the prostate apparently so getting it out seemed the right course of action as the consultant said I could have radiotherapy after surgery but not the other way round.
Loss of sex life is a major loss to a fully functional man ,despite the nerves being spared ,no erection without a pump , dry orgasm is not dry as holding bladder tight is not possible for me. These things you need to talk with consultant and partner about. Feel free to ask more about the after effects its good to talk.
Graeme
What a frank and honest answer Prostateofshock .
You said you’re going to have a second opinion from a leading surgeon Bobblejes but just to make sure, I would also consult a leading oncologist.
YOU HAVE TIME. Don’t rush into your decision. AW
Thank you so much, so even though your nerves were spared, there were no elections. This is definitely something that I need to discuss. Thank you for sharing
Were awaiting an appointment with the oncologist to ask & research the options from their pov. We do have time, bit the future does look bleak. I do worry about my hubbys mental health.
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