Worsening incontinence

Hi Tim62 , I noticed that nobody had replied, so my response will bump this back to the top.  RT seems to go on working for months (years) after treatment.  In my own case I had bleeding over a year after my RT and was diagnosed with radiation proctitus. I imagine the same might happen with your waterworks. Others on here normally recommend doing some exercises to help with bladder incontinence.  I don’t have any experience with bowel incontinence but maybe others can help. David

Hi David, thanks for your response. I had tenasmus, during treatment, which was painful but sorted with suppositories. The bleeding sounds horrible. I hope mine gets no worse. It is not bowel incontinence that I have, rather, just having to go several times a day wheras before RT, it was only once.

Hi Tim62 

My treatment was 20 sessions of RT which ended mid August 2024.I have no bladder problems but my bowel does occasionally make urgent demands which I am well aware should not be ignored. I would not consider that to be incontinence but can also say that accidents do happen. From what I have understood from research this should improve with time but could potentially take many more months.

I hope that reassures you are in a similar situation to others.

Rod

Hello Tim (Tim62) 

I have pondered your question for a while before replying. I am still the owner of my Prostate as I have been down the HT/RT route but have been around the Community for 3ish years. From my reading of posts and threads here bowel irritation and increasing incontinence 4 months after surgery isn't common at all. My suggestion to you is this is a case for either your surgical team or GP to investigate as things should be much better by now.

Best wishes - Brian

 Tim62 , the bleeding wasn’t an issue once I understood what was causing it, but quite scary the first time it happened! Gradually it has eased off and I have now had several months without a bleed.

Reading your reply, I got the impression that your problem was more frequency than actual leakage.  Taking Brian’s (Millibob ) point, if it is leakage, then definitely chat with your team.  If it is just frequency and urgency your GP might be able to help.

Hi Brian, thank you for that response. I value your experience and sharing your thoughts. I will do that. 

Kind regards

Tim

Hello Tim. This video popped into my inbox and I wondered if it might give you some pointers to enable you to talk to your doctor.

https://youtu.be/tF-MRRoiuUE?si=UfaGJVPdKaFLuAOG