My profile is pretty up to date re my dad.
it seems to have just gone downhill in the last few weeks, so for around 3 weeks he has struggled to eat, feels really nauseous, has no energy, has a lot of pain in his back and around his tummy, is insteady on his feet and breathless. He’s been too unwell over the last few weeks to attend hospital appointments so his last consultant appointment was on the phone, he hasn’t had his bloods taken and this week his prostap injection is due so we’ll need to somehow rearrange this or see if someone can do it at home.
on Thursday his GP came out to the house and prescribed him some drinks for some calories/energy, some antibiotics as his tummy and back felt tender and oramorph. Despite this he’s still in so much pain, can’t get out of bed, is struggling to take his medication due to feeling nauseous and can’t stomach the calorie drinks. It feels like he has well and truly given up. Is it still too early for the oramorph and antibiotics to have made any difference? The GP planned to visit again on Thursday but that seems too far away and he’s almost ran out of oramorph (it’ll be gone by tomorrow tea time) he feels like the pain is getting worse, he’s really emotional and has zero energy. We don’t really know what to do to support him or to help him? We rang the consultants secretary and allocated nurse on Friday but they said just to continue to liaise with the GP but we just feel at a loss and like he’s just been left in pain. He’s really unsteady on his feet so can’t really get out of bed, my mam helps him to the toilet but luckily he has a catheter so doesn’t need to go too often.
His PSA levels are on the rise he has scans booked in w/c 3rd feb and a meeting with his consultant on 17/02 to discuss results and if needed a new treatment plan but at the moment it feels like there’s no way he’ll get to his scans.
is it a dip? It is the end? How do you know?
Hello Zoey, it sounds to me as if you need medical advice. I would suggest ringing NHS 111 this evening.
hth
Hello Zoey (Zoey88)
I am so sorry to read your post - I have just come back online, having been out this afternoon.
I agree with the post above from Worriedwife you need to call 111 now and once you have had a response from them our support line on 0808 808 00 00 (8am to 8pm 7 days a week) for some support for yourself and dad.
I don't know what 111 will advise but contact with your GP is essential first thing in the morning and let them know of the circumstances.
Best wishes - Brian.
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Hi Zoey88
I’ve just read your profile, your dad has had so much treatment in the last three months. Radiotherapy and he’s just finished chemo . Hormone treatment in the mix as well and you say he’s had several infections. He could be really suffering with the side effects of all of this treatment and the infections. He really needs the blood tests done as well as that will say a lot about his levels, I can imagine they are all over the place and really low. He’s probably panicking as well because he must feel really sick and nauseous and incredibly weak. As worried wife has suggested you need to contact 111/ Gp and get some help. Meanwhile you need to keep him hydrated, get him to nibble biscuits , ginger are good for sickness and chicken broth is easier to stomach. I don’t think it’s the end, he’s really been through the mill and it’s possible he could have another infection because his blood count must be really low .
Phone his GP surgery and if he deteriorates phone an ambulance.
please let us know how he’s gets on.
L x
Hello Zoey88 .
I am sorry to hear about your dad and it must be horrible to see him suffering. Antibiotics start working straight away but it can take 2/3 days before you start feeling better and this assumes that the bug is susceptible to it in the first place. The doctor should be able to get an antibiotic screen done which identifies the most effective ones. The oramorph should provide some relief quickly so if your dad is not getting any benefit from it then you need to speak to the GP. My husband has been given Fentanyl patches which give him some relief. A precaution with these drugs is that he should not take anything with codeine in it. I agree with Lorraine that a blood test can tell a lot so try and get one taken at the same time as the Prostap injection, if not sooner.
Hydration is important plus anything you can get down him little and often, especially protein - scrambled eggs/omelette, soups with lentils, Greek yoghurt, banana, fish. Keep it soft as the chemo will have affected the gut and he needs to get it back into balance.
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