Diagnosed on 30 December Happy New Year

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Hi All

just a quick message to say hello. I was diagnosed on 30th December 2024. After 5 years of steady rising PSA now 5.9. Brother was diagnosed a week later after I told him to get a PSA after my MRI he was PSA 32. He’s super fast tracked with bone scans. initially thought is he is T3 ( I may well have saved his life) I’m going to see urology team in mid February to discuss treatment options. Take care all. My stats are in my bio 

  • Hello  and welcome. Well done for raising awareness with your brother but don't forget that children will also be 2.5 times more likely to develop it as well plus if you have certain Genes the female line could be at risk of cancer.

    Your stats look as if you are on a curative pathway and will have many options but your brother will probably have more aggressive treatment. I don't know what information you have but a good starter is a book which you can download for free.

    https://issuu.com/magazineproduction/docs/js_prostate_cancer_guide_for_patients_ezine

    Please ask any questions and we will try and help.

  • Hi

    Thats a good thing you did with your brother, it is a difficult thing to face, but togeather you can access how each one of you is reacting to their treatment, hope things go well for you both, keep us informed how your both doing.

    Stay Safe

    Joe

  • Hello  

    Another warm welcome to the Macmillan Online Prostate Community from me, although I am so sorry to find you here, I am Brian one of the Community Champions here.

    Well done for raising awareness with your brother (tell him he's welcome to join us here Thumbsup) and if you have any questions, however trivial - please do feel free to ask them.

    Best wishes - Brian.

    Community Champion badge

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    Strength, Courage, Faith, Hope, Defiance, VICTORY.

    I am a Macmillan volunteer.

  • Thank you that looks very helpful 

  • Hi Joe. We are very impressed with the speed and efficiency of the NHS for sure

  • Hi all and thank you for your wisdom. I saw the surgeon yesterday and he recommended Active Surveillance for me. He said that what he would do if it was his prostate. I know the risk but its worth the trade off for a few more year without treatment or never Fingers crossed my brother was confirmed 4+3 all scans came back clear but has a PSA of 33 so they think it may have left the prostate but has not colonised yet so is not showing on screen. He had his first hormone injection yesterday and will be discussing radiotherapy options for 3 months time over the next couple of weeks. They are still confident of a curative result of his treatment. Take care all

  • Hello  

    Well good luck with the Active Surveillance (it wouldn't be for me) my view which is personal is fight the bugger whilst you are younger and fitter - it's not going away.

    If you or your brother need anything going forward we are always here for you both.

    Best wishes - Brian.

    Community Champion badge

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    Strength, Courage, Faith, Hope, Defiance, VICTORY.

    I am a Macmillan volunteer.

  • Hi Orange Crush

    Thanks for sharing.  I've read your profile - thanks for completing - and have seen that all 24 of your biopsy cores were positive, which seems high to me (no medical training).  Are you sure that's correct?    

    Also, on your profile it would be useful to includes, for general ease of reference, the dates of key events, especially as hopefully a good number of years, perhaps many, will elapse before there is a material change, if indeed that occurs at all.

    BTW, I am also on AS, with Gleason 3+4, details in profile, hence my particular interest.  

    Thanks, Peroni

  • Hi Peroni. I have updated my profile. Yes 24 out of 24 MRI targeted biopsy. I am very mindful that AS is possibly kicking the can down the road but I’ve got things to do this year SobSob

  • I’m lead to believe that 3+3 won’t leave the prostate and AS is standard practice in the USA.