Hello All.
not sure if you can help but I’m just having a real meltdown atm. My OH is due PSA Tuesday before his HT inj which will be 12 months after chemo & RT and 2 years into this horrible disease.
he was originally diagnosed T2a Gleason 7 but a PSMA showed suspicious spots on T5 & 7th rib . Treated as oligometaststic so denied surgery.
it was then decided may be Gleason 9 as some cells mimicked grade5 so we are on this rollercoaster.
im not really sure what my question is other than is it reasonable to expect the PSA to stay low for a little bit longet? Last PSA was less than 0.1 which is as low as our health board measure.
thank you for reading and being there. X
Hello Hanandy
I am so sorry you are having a "meltdown" - we all do it at some point and it's better on here than in front of the one you love.
So 12 months after chemo and RT, and being on HT, that combination should be working fine. A PSA of less than 0.1 is magic (in over 3 years mine has never been below 0.29!!).
The rule of thumb is that if his PSA rises more than 2 whole points (2.1 or higher) then further intervention would be needed. The other guideline is if there is a rise in 3 consecutive tests. As he's had RT it's normal to have "PSA Bounce" so Tuesday's PSA may show a slight rise.
A Gleason 9 is aggressive (sadly I am 1) but it's only aggressive when the HT isn't working. The HT is there to keep the cancer supressed.
I do hope this helps - if you want a little bit of extra help our Support Line is there for all the family - please give them a ring on 0808 808 00 00 (8am to 8pm 7 days a week). They are a great bunch.
Good luck wit the test and let us know how you get on.
Best wishes - Brian.
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