Treatment now very close

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Hello everyone.  I'm Peter. I asked a question a few weeks ago on another forum and am now on the journey.  I am a Macmillan benefit advisor, so have a lot of information, both of symptoms and post treatment from talking to clients.  What they cant fully tell me about in axwayxI can appreciate is the bit about where I am (almost) now, the treatment cycle.  I was diagnosed with prostate cancer T3aN0M0, PSA 33 and I understood what that meant from day 1.   My discussions with the Oncologist and CNS's went very quickly...!!  I have been offered mini dose of brachytherapy to kick start the radiotherapy which should shorten that by 1 week.  I've had the pre-op, so I'm now just waiting to be called in for the brachy.  My plan as discussed with the Oncologist is for the radiotherapy to be given in the afternoons, so I can 'get over' the washed out feelings during the evening and overnight, and then continue to call my clients in a morning and do at least half a weeks work.  Its a plan - we'll see how that goes!  I'll keep you informed.

  • Hello Peter ( 

    Welcome back. I am pleased to see you have a plan of action and hope all goes well for you. I confess you are the first Community member I have come across on a 

    mini dose of brachytherapy

    I had the standard 20 fractions and although there was fatigue I worked full time during the RT. 2 Years on I haven't got any side effects of the RT.

    Keep us posted as to how you get on.

    Best wishes - Brian.

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  • Hi Brian

    My Oncologist says the mini-brachy is a new idea that can take 1 week (5 sessions) of radiotherapy off the whole treatment, so 15 instead of 20.  It needs a night in hospital and a 2 hour session under General anaesthetic and the probably uncomfortable bit is that it's done in the same way as my biopsy was, through the perineum with multiple needles.  It sounds horrific and probably not everyone would go for it, but hey, why not try.  He offered a wider option of doing the lymph nodes as well, but as there's no sign of it there, why do that. My thought is if the lymph nodes are affected, we'll find out sometime in the future when techniques and treatment will be different again.  The consultant Radiotherapist is also Macmillan funded and I know her, (professionally), so I know i'm in good hands, even though it's a step into the unknown....!  I will indeed keep everyone updated.  Maybe not every step of the way, but updates will be forthcoming.

  • Hello Peter ( 

    Well I keep saying "everyday is a school day" being a volunteer on here and I have just added a new treatment to my list!!

    It's very interesting that they can include the lymph nodes in this treatment and as you say "not everyone would go for it".

    Don't answer this if you feel uncomfortable - which hospital or hospital trust or area is this being used?

    I do wish you well with this - please do keep us posted.

    Best wishes - Brian.

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  • Hi Brian 

    Just to confirm, the lymph node treatment is part of the radiotherapy not the brachy session.  Discussion with the oncologist showed that it's too early in the trials to see how much it reduces further treatment needs and/or life expectancy, so my thoughts were that they are zapping a wider area for no known benefit so lets not bother.  That's different to the brachy, they know what that is and what it does.  Although here is a very small chance it won't make any difference and I'Il still need 20 sesions of radiotherapy - Hmm!  The Oncologist said in your position I'm not sure I would know what's best either.

    I don't mind telling you that i'm being treated in Poole, at the Dorset Cancer Centre.

  • Thank you Peter ( 

    All very interesting - I confess to having my pelvic lymph nodes "zapped" whilst I was on the "sunbed" . I actually found 20 fractions very easy and I don't think a General Anesthetic and an overnight Bed and Breakfast with an "all inclusive" wristband in exchange for 5 sunbed sessions to be a good deal!! (Personal thoughts only).

    But i am interested to see how it goes - thank you for the details.

    Best wishes - Brian.

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    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    Strength, Courage, Faith, Hope, Defiance, VICTORY.

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