Hello Friends, I am new to this forum and this is my first post but I am a member of the Bladder cancer forum having been diagnosed twelve months ago with T1G3 and carcinoma in situ non muscle invasive cancer. I have had three biopsies and nine BCG immunotherapy sessions. This week, I had another routine bladder biopsy. However, after the procedure the consultant came to see me to say that she did a DRE on my prostate and has requested an MRI and PSA. My Discharge summary says "firm and bulky right lobe T2 noted" ... I was only in hospital for the day and before I was discharged, I asked the nurse if they thought it was cancer and was told "they are concerned".... So this has completely blown my mind as it has been stressful enough dealing with the high grade bladder cancer and now there is also concern about my prostate... I have a history of bacterial prostatitis and take Tamsuloson but there has never been any previous concerns about my prostate during biopsies and surgery in January, Feburary and July, so this is obviously a new development....... Firm and Bulky right lobe T2, what does it even mean? How worried she I be and if the MRI scan shows something concerning what happens next? My specialist nurse said there is no pint in doing a PSA now as it will give a false reading so soon after surgery....My MRI on appointment for my prostate isn't until December 22nd, so I have a long time to wait and even longer for the results which definetely won't be before Christmas.. Any thoughts and advice will be apreciated...Thanks, Frank
Hello Frank (Frank123)
A warm welcome to our little part of the Community - I must confess to spending some time on the Bladder Community in the last few weeks looking after one of our members and I must say my fellow Champion rily does a cracking job looking after the forum so you have been in good hands and I have a lot to live up to.
The thing to remember with Prostate Cancer is it's usually a slow growing cancer and there is time between realising you have the cancer, to diagnosis and treatment.
The Prostate can best be described as a walnut with 2 halves and is usually smooth to touch (not that we want to!!). The normal diagnostic process is PSA test (agree no point at present after surgery), MRI and finally a Prostate Biopsy.
A T2 diagnosis is very treatable and very much heading to a "Curative Pathway" and you will be given a formal staging after your biopsy when a treatment plan will be formulated at an MDT meeting. The most likely treatment will be a combination of Hormone/Radiotherapy (I doubt surgery to remove will be an option due to your bladder issues).
Here's a link to our guide to Prostate Cancer and Staging:
https://www.macmillan.org.uk/cancer-information-and-support/prostate-cancer
Make yourself at home here, we are a decent bunch. Feel free to ask any questions, you will get answers however trivial your questions are.
Best wishes - Brian.
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
Strength, Courage, Faith, Hope, Defiance, VICTORY.
I am a Macmillan volunteer.
Thank you Brian so much for taking the time to give me such a friendly and helpful response, I am so grateful.. I need to read and prepare and get myself ready in anticipation of the result.. I can see this group is going to be important to me for the foreseeable..
Frank
Good Evening Frank (Frank123)
It's not a problem - we have a cracking bunch here, many who have "been there - done that" and we just want to help others who are where we were "many moons ago". We do have a tendency to indulge in humour when we can and have a general thread (link here):
where the chat can be football, cookery, or anything that we fancy. Our aim though is for everyone to have answers to every question and be guided on their personal journey,
Best wishes - Brian.
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
Strength, Courage, Faith, Hope, Defiance, VICTORY.
I am a Macmillan volunteer.
Hello Frank
Welcome to the gang your facing it all at the moment and hopefully everyone here can help, I’m dealing with Lung and Prostate Cancer as well and it can be mind boggling at times but we just half to fight the beast that’s ifacing us,mines is in curable but treatable so I’ll fight it with every inch I’ve got,I’ve not much knowledge off bladder cancer but there will be someone along who can help welcome my friend
Hello FrankFrank123 and welcome to the family from a wife. We have very few on here who have both bladder and prostate cancer although I understand it can be more common than we think. Normally the prostate will feel smooth and a little spongy and, as Brian says, it is the size of a walnut and like a walnut it has two halves. The DRE has identified that one half feels firmer and larger than the other which is more indicative of a lesion as compared to an enlarged prostate which would be seen in both lobes. The T2 bit indicates that it is still confined to the prostate but this needs to be confirmed with scans and a biopsy. Once all the information has been collated then you will be given your options. There is a lot of terminology to get your head round but as a starter there is a very good book you can download for free.
https://issuu.com/magazineproduction/docs/js_prostate_cancer_guide_for_patients_ezine
Please feel free to ask any questions but the one piece of advice everyone will give you is to try and help yourself by getting as fit as possible as this really does help reduce the side effects from any treatment you are offered.
Thank you so much for your advice and sharing the lnk for the magazine which I have already downloaded. I have spent a year undestanding my bladder cancer diagnosis which started off as superficial low risk and incresaed to high grade, high risk after each biopsy and now it seems I need to start learning new terminilogy about the prostate cancer to try and make sense of what is going to happen next.
Frank
Frank (Frank123 ), welcome to our group although at present you haven’t had a definitive diagnosis. PCa isn’t like other cancers in that it is generally very slow growing, so from early testing to treatment a few months won’t matter. Try not to over stress (easy for me to say) but the fact that you have been initially diagnosed T2 means if you have anything, it is likely to have been caught at such an early stage and may not even need treatment for years. There are some of us on here where the initial diagnosis was ‘not curable’ but we have been around quite a while (7 years in my case). PCa is certainly curable if caught early enough and very treatable otherwise. I am hoping they keep me going long enough for a cure to be found! Keep us updated and ask any questions. David
Thank you David, I am trying not to over think it and worry too much but as you say it’s easier said than done, especially after a year of bladder cancer.. Waiting for the results of my bladder biopsies and then MRI scan on 22nd is the hardest part, so I will post updates as and when I have any news
Frank
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