Diagnosis confusion

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I people just came out of the appointment with the urologist and came home completely confused  she couldn't tell me almost anything, I have all my exams and ,I had 10 lymph nodes in the pelvis suspicious but turn out to be only 5 ,nothing else ,nothing in organs , or bones ,only 5 positive lymph nodes ,the urologist looked completely lost  she couldn't tell me no prognosis ,nothing ,when I ask her  prognosis for life expectancy she blocked, can be one year ,can be five ,I don't know ,she said ,by the way ,I'm 54 and no health problems, can someone give some feedback, please. 

  • Hi Murcao , sorry to hear

    Do u have any more detail, PSA the last few if  poss.  What does the Mri say about the actual gland , is anything showing or is it just in the 5 nodes, so they say. I presume so far no biopsy?

    Regards

    Steve

    • Psa initially 132 ,mri say cancer contained in prostate, both sides ,already made biopsy but they didn't give me the result yet ,from the mri ,ct scan ,bone scan ,all clear ,only tumor on both sides prostate and 5 positive lymph nodes ,all body clean .
  • Ok, so if def in nodes it does make it more difficult but it is still potentially curable. I presume that they are starting u on HT soon or even taking it now followed by RT at a later date? I assume  that they have talked about treatment?

    Steve

  • Hello  

    A warm welcome to the Macmillan online Community - I am so sorry to find you here.

    That's a high initial PSA, and as you say cancer contained in the gland - then I am curious as to where we have the lymph nodes being involved (having said that they though mine were!) - see my journey by clicking on my avatar for details.

    We do need your TNM staging and Gleason score to help you more - these come from the biopsy although as  has said - have you started on Hormone Therapy yet?

    Best wishes - Brian.

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  • According to ct scan prostate membrane was not broken, but According to the urologist it may involve the lymph nodes through blood vessels, probably, anyone with 5 pelvic lymph nodes positive or more to give some feedback. 

  • Hello  

    Well that's a new one on me - and I have been around a while - but always learning!!

    Do you have your TNM and Gleason Score from the biopsy please?

    I know I had a high initial PSA of 182 and the cancer was still in the actual gland so i am keen to learn.

    Best wishes - Brian.

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    • T2 N1 M0 GLEASON 4+5
  • Hello  

    So

    T2 - It's not left the prostate gland.

    N1 - it's in 1 or more lymph nodes  - just how? If it's not left the gland!

    Gleason 9 - So it's very aggressive.

    I would have thought as  said above you should have been started on Hormone Therapy with Radiotherapy to follow.

    I would be asking your team for both a full explanation and a treatment plan.

    Best wishes - Brian.

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  • Hi Millibob !

    Actually it’s possible to have a T2 N1. It’s definitely not common but with high-risk Gleason it’s possible. The T2, from my knowledge, is stil, well within the prostate and there is no signs of EPE or for that matter seminal vesicle invasion or actually that it has broken through the capsule into the bladder, rectum etc. (e.g. T4).

    But still, a T2 and N1 still indicates regional lymph nodes and from what I know this should be able to be treated with ’curative intent’

    Best wishes - Ulf

  • It's strange ,numbers ,I have 5 positive lymph nodes, according to urologist ,and here in the netherlands they say the limit to curative intent is maximal 4 ,go figure ,that's my thing ,must make sure 1 ,at least ,lymph node wasn't incorrectly diagnosed.