MRi Scan two lesions in prostate

Hi Brian 

I've read they've definitely done trials at the Royal Free where I'm having my RT for empty bladder treatment but been told its full bladder treatment for me I'm taking Betmiga at the moment but I'm hoping the urology team have another medication which will help me because I definitely need it .

Regards 

Peter 

Hi all

I'm on hormone treatment for 4 to 6 months before my RT so not so much of a concern now but really worried when my RT starts I'll really struggle with definitely wanting to wee at some point as have a really bad overactive bladder, been drinking 6 to 8 glasses of water/squash a day as suggested when on hormone treatment I'm on Betmiga tablets that relax the bladder but I'm still weeing loads.

Just wondering if anyone has had the same dilemma  ?

The oncologist when I spoke to him on the phone said there's medications that can help but with my bladder it be a wonder drug .

Has anyone been in the same situation ? ,any information would be very much appreciated. 

Best wishes 

Peter

I am currently going through radiotherapy and, whilst I don't have quite the same dilemma, I can offer you an idea of some of the things that happen.

First off, this is what I was told to do.

About 1 hour before you leave home, do the enema thing. It takes 5 to 15 minutes to work, so you are organised and have plenty of time.

Then, just before you leave, go to the loo.

Whilst you are on the way (my trip is about 35 minutes mid-morning, about an hour in the rush hour) drink the equivalent of a pint of water.

If you have been hydrating properly, then you will have effectively topped up what you let out earlier.

You will arrive ready to go.

That worked perfectly until this morning when they did the ultrasonic scan and said "You have too much!". Up until then, I thought this was a yes/no, full/not full, decision. It appears, however, that there is a sweet spot. I'd give the measurements except for the fact that I think they are personal, and depend on your size and the size of the bladder.

So, I had to go to the loo and wee into a cardboard tray, to release just enough. I thought I was going to have trouble with that, until I didn't*. Quick high-five with the radiologist, then zapped and on my way.

It seems to me that it is a matter of understanding timings. How long it is until what you pour in starts to come out. If you can understand that over the next months, then you will be able to control the situation yourself.

*I have been using the NHS Squeezy App to monitor and do pelvic floor exercises. I am pretty certain that was what enabled me to stop mid-flow.

You will work it out, and then be fine.

Steve

Hi Steve 

Thanks for that information I'll definitely get the app for the pelvic floor exercises, I'm about 35 minutes from the hospital so same timings, my bladder is so unpredictable yesterday a pint of squash lasted 15 minutes until I needed to pee 4 times in 40 minutes and today pint of squash has lasted a hour without weeing.

Thanks again hope all is going well with your RT

Best wishes 

Peter 

Hello Peter (Psb2024) 

Some advice I have previously given to others:

* Plan your route to the Radiotherapy making notes of toilets on the route (MacDonalds, Costa Coffee etc).

* If travelling in the Countryside make a note of lay-by's and large trees.

* There are male "pee bags" and accessories from a famous online retailer - a standard empty fabric conditioner bottle does the same job!

* Get yourself a Macmillan Toilet Card and Radar Key. details can be found in the link. Again the Radar Key is available at that online superstore named after a South American river!!

Trust me be prepared, I had an indwelling catheter for 10 months and had to learn to wee again from scratch!!.

Best wishes - Brian.

Hi Brian 

Thanks again I'll definitely be getting the Macmillan toilet card ,blimey that must of been tough 10 months with a catheter, hope everything is all good with weeing now  

Kind regards 

Peter

Hello Peter (Psb2024) 

My entire journey has shall we say been "interesting". From being on a "curative pathway" with a 182 PSA, TURP operation, Catheter - i don't mess about!!

Within a week or 2 the catheter became routine and "part of me". Apart from two faulty bags (wet socks and shoes!!) no problem whatsoever.

The full trip is here  Millibob 

Best wishes - Brian.

Hi Brian 

I'll definitely have a read of your full trip thanks again for your much appreciated advice 

Regards 

Peter

Why don't you try cutting down a bit on the water consumption? I know you've been advised to drink a certain amount but it might be too much for you, particularly in Winter, if you try it a couple of days see what happens.

I'll give that a go ,I think whatever happens it's going to be tough the RT with my bladder