It’s been a while since I have posted . I have updated my profile since I had the initial diagnosis
Operation went fine and have recovered well despite an extended 1 week stay in hospital.
I anticipated nerve removal so ED total but relieved that urinary incontinence of little or no concern so long as I’m careful .No problem also of getting through the night dry. Not even using one pad a day
Histology came back with bad news . Evidence in Seminal vesicles and a Grade 5 in the prostate base meant an upgrade to 4+5 =Gleeson 9 compared to previous 4+3 =7
now wondering if the full 24 biopsies ( perhaps they were ) had been taken rather than the reported 21 would they have revealed the grade 5 and altered treatment choice
also wondering if I’d had the PSMA would it have shown the additional areas
I’ve stayed positive and remain realistically so about the post op PSA due on 30/9 . Fingers crossed .
Good Morning Magpie29
I agree with the post above from mstev2 - if your team think the histology shows they have all the cancer and it's in a tray on the laboratory bench - then wow - you are good to go.
I know the feeling about having your Gleason Score changed from a 7 to a 9 (been there done that) but if they have it all it matters not about the grade. A PSMA PET scan would have shown any spread but it's down to cost and availability in the NHS.
I wish you well with your PSA reading o 30 September - please let us know how it goes. It's also very pleasing reading about your positive comments regarding the post operation recovery. That's great news.
Best wishes - Brian.
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Good morning Magpie29 .
In hindsight you may have made different decisions but we can only do what we think best at the time so now you must look forward. With surgery there has always been a risk of recurrence and with the seminal vesicle involvement you are at a higher risk so keep a close eye on the PSA. There is a school of thought that if you see an early recurrence then hitting it hard and fast can keep you on the curative pathway. I hope you continue to recover well and keep us posted.
Thanks
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