Bloods done on Monday 29th July . Oncologist nurse called yesterday to find out how OH is doing . Bloods are great , PSE down to 3.1. No real side effects other than fatigue . She said she will only phone if bloods aren’t great now. To see Oncologist in October but will have MRI beforehand .
Had a list of questions for her regarding the appointments , MRI, radiotherapy and CT as feel like a headless chicken right now. Thought it had passed and feeling a bit more human but no such luck as we had been given too many mixed messages to get head around it all and syphon out the wood from the proverbial trees .
I kept reading the letter from the oncologist as there were bits I couldn’t grasp after being told by three different professionals before seeing Oncologist that only left seminal vesicle involved and one nearby lymph node . However the letter says both seminal vesicles and three lymph nodes . One nearby the prostrate and possibly a femoral & inguinal node. So if they are involved no curative pathway and OH would have palliative radiotherapy once a week for 6 weeks . Needed to ask about “palliative” as it just scared us as when you hear that word your head jumps to conclusions. Has anyone any words of wisdom regarding the lymph nodes and radiotherapy .
