Yesterday I had results of my latest PSA test. To recap, diagnosed in early 2017 with PSA 74, G9, T3bN1M0. Had Chemo x4, RT x37 and on Zoladex.
Since then PSA went down As follows
2018 - 2022 0.1 (readings only given to 1 decimal place in those days).
April 2023 0.2
July 2023 0.3
Oct 2023 0.56
Jan 2024 1.19
April 2024 1.43
I was expecting a call from my oncologist as part of the 3 monthly review, but instead the CNS called (always a good sign I think). My PSA is now 1.69 which leaves a bit of a dilemma. They were assuming that I would be over 2.0 and I would automatically reach the criteria for Darolutamide to be prescribed.
As the PSA is still rising, there is an increasing risk of mets, so the view has been taken that I should go onto Darolutamide anyway. In the view of the CNS ‘it is a well tolerated drug’, but if I have problems, then still got more options in the cupboard! It is a judgement call as to how long to leave a rising PSA against the risk of mets. This option should give me a bit more time.
So CT scan next to check no obvious mets and then Darolutamide. No point in doing a PET at present as if minor mets found then still same treatment. Sounds like a plan to me. Stress levels back to near normal and off we go again! If anyone out there is on Zoladex and Darolutamide I would be interested to hear how you are doing.
Onward and upward, David
