Hi all
Haven’t been particularly active as husband had his first chemo on 10th July and I’ve been quite busy and watching him like a hawk!!
Will update more on that later.
Had call from doctors surgery they want to book telephone cancer review for 29th July. Slightly confused as surely a telephone review is missing the point and can’t assess someone just by speaking to them and this is a doctor we have never met.
He’s new and also nearly delayed the first hormone injection by not understanding the instructions and spending a week backwards and forwards and then being very unprofessional about the cancer team. He wanted to give my husband a 6 month injection rather than starting on monthly first to see if any reactions. He also refuted my request for vit D and generally leaves me with no confidence.
What should we be looking for in this review?
Thanks.
My consultant recommended Calcium and Vitamin D3 in our first discussion.
She sent a letter to my GP Surgery which included that.
I have been prescribed "Calci-D 1000mg/1000iu chewable tablets.
I can't find anywhere that I can buy them, so if it came to it I would ask my pharmacist.
They are described as "calcium/cholecalciferol" - with the second word being Vitamin 3.
Steve
Changed, but not diminished.
I'm all for a "pushy wife's club".
Go for it.
Steve
Changed, but not diminished.
Another pushy wife here. A GP in the UK once called me an interfering wife because I questioned why he had overruled a consultants prescription because of price. Formal complaint time and give him his due he did actually phone up and apologise. Don't worry about appearing pushy GilliB - it shows that you are taking an active interest and ultimately will get the best for your husband.
Hello GilliB,
When I was originally diagnosed with prostate cancer, I received a letter from my GP practice offering to discuss my diagnosis, treatment plan & any other concerns I had. Enclosed with the letter was a questionnaire ''Living With & Beyond Cancer - a Concerns Checklist'' which is part of the National Cancer Survivorship Initiative. At the time I didn't take advantage of this as the team at the hospital had been very supportive & had already dealt with all my queries & concerns.
The letter also went on to say that towards the end of my treatment I would be invited to make an appointment with the GP practice to discuss any on-going treatment needs, what side effects I was still having from treatment & any concerns I or anyone close to me had & to see what support could be provided. I did find this meeting very useful & the questionnaire was very handy in identifying areas I wanted to discuss.
If it helps at all I can (try) to upload a copy of the questionnaire.
Prostate Cancer is a couples disease as it affects both parties in different ways & if your husband is happy for you to be involved, I think it's important that you are able to be part of any conversation with the GP. I know if it were me, I would not be happy in having a telephone conversation relating to a medical matter in an open plan office where everyone else was able to hear at least one side of the conversation, & so would be contacting the surgery to preferably arrange a face to face appointment, or if not possible a phone call at home where the call could be on speakerphone so you can both hear.
Best Wishes
Brian
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