Newly Diagnosed. Upset, angry and terrified

Just in from another big mountain day. Having a beer.  Anyway, enough of me…. You are at the same point I was on 14th September last year. By 29th September, I had my curative treatment pathway sorted and I was in a MUCH better place.  To be honest, I’m expecting both your CT and bone scans to be clear (they have to check to make sure: it’s the normal procedure).  So, keep the faith, hang in there JPMJIG , and let us know how things pan out.    AW

another bit done John.  Did they say when you will get the results . We were told 4 weeks but our GP had them within days and updated us as we were also beside ourselves with worry . Hope you and your wife can relax a bit . Take care and keep in touch with us.

best wishes
Liz & OH 

X

You and all the others on here, what can I say. I honestly don’t think I’d get through this without you all. Thank you. I’m in tears as I’m typing. 

Hope the scan went well, the wait for the results can be nerve-wracking too (definitely was for me) but there is no way around it as these things take time.  With your base numbers being single digit PSA (many of us here were with double or triple digits, not to mentioned Prostate Worrier's famous 1000+), I really hope it will show things are contained to the prostate/seminal vessels only, which means a curative pathway. The treatments available nowadays are extremely effective for both cure or management pathways and you can expect many more years of life. 

Hang in there, things will get clearer soon.

G

Tears of relief I hope, knowing that you are amongst friends and that there is someone to hold your hand through this very difficult time.

Thanks G. I’m hoping it’s contained. I don’t know how I’d cope if it’s not but I guess I can will somehow 

JPMJIG  - even if it’s not contained, it’s not the end of the world.  You would enter the world of the oncologist and radiotherapy pathway.  The results are similar to those of surgery (excellent success rate for your presenting histology).  I had full pelvic radiotherapy and have come out the other side.  Trust me, the fear of the unknown is your biggest obstacle.  You’re in good hands - let the experts do their thing and come to us for (unqualified) advice to help you prepare your questions to your consultant. One step at a time.  AW

Hi John, My PSA was 5.3 that started me down this route as well. Click on my profile, I have ben using my profile as a diary.  This forum is a great source of reliable information, hope your head has stopped spinning and you are feeling for settled. Keep in touch.

Hi JPMJIG.

Good evening, yes I was diagnosed last June 2023 at the same age as you.

My PSA was 1000+ upon diagnosis which was very scary!!!!

Following 12mnts of HT the PSA is an incredible 1.79 madness!!!!!

From day one the consultant was very negative great!!!!

But over time he has mellowed massively!!!!

He even says I will be "Fine" every 3mnts that I see him!!!!!

"Positivity" is my middle name!!!!

So this "Cancer" had better watch out because I am "Coming for it"

"Stay Strong my Friend"

Prostate Worrier.

Yes AW, I can't believe how lovely and helpful you all are. I am forever grateful. I am in a highly charged, anxious state which is causing some depression. I am not handling this very well so this forum is very helpful. Despite my hard efforts to think positively, it's very hard and worrying. I also can't accept the word cancer. I can't come to terms with having it. I have a meeting with the NHS tomorrow (different Consultant) to deliver biopsy results. They don't know I that I already know the results which were delivered to me last Friday by Dr Negative/Gloom. I am scared about tomorrow because, in fairness, there's nothing really positive for them to say to me really is there? It's so hard. I wish someone could take away the emotional pain I am in