Newly Diagnosed. Upset, angry and terrified

Hi Nice to hear from you and the news is great . Just take a day at a time till you get your treatment. You also have a wedding to look forward to 

Liz & OH xx

You are going to live a normal life span with your cancer, take care

That's the spirit!

Hi John been through all tests and met with urologist 5 weeks ago.in a similar cold manor as you experienced I was told I am stage 3 gleason nine .on HT now ,met with consultant at cancer hospital last Monday 22nd July and to my dismay the oncologist told me I am in fact stage 4 9 not stage 3 9 .crazy stuff .although my outlook is different I am getting my head around it as I'm sure you will .keep strong and may the force be with you 

Hi Mal CG, we have been travelling the diagnosis path since March . The first nurse called telling us OH has cancer in his prostrate   Seminal vesicles and possible one lymph node.  Meeting to discuss options and  told by the specialist nurse surgery or HT/RT.   He then returned a call and said no surgery no RT just HT. We have been struggling with the misinformation. We  finally met with the oncologist  18th July and we now have a diagnosis T3B N1Mx no surgery but HT and RT. They are dealing with peoples lives and emotions at a very stressful time and they need to get their act together and inform not misinform.

Regards 

Liz & OH 

Good luck going forward, and hoping all goes well with treatments. 

Once one gets the right diagnosis then we can try and get head around it .

I should have said he was on Bicalutamide for 21days and got his 1st prostap injection 25th June and then started the Aberaterone  / prednisone 19th July . Repeat MRI  before his next consultation 10th October . With the view to either radical or localised radiotherapy depending on the lymph nodes . Xx

Very similar to my own, equally recent, experience.

I am T3B N1 MX or M0 dependent on whether you take the bonescan fully into account (nothing shown).

The Urology Department told me exactly this, and put me on HT (Zoladex abd Biculamatide). They said they thought I would be on it for life. They made no other comments but gave me the Macmillan booklet on advanced prostate cancer.

This was bit dismal, because all my research suggested that with only one lymph node, immediately adjacent to the prostate (confirmed both by MRI and CT Scan) and no distant mets, I had locally advanced prostate cancer, which is much easier to get to grips with. They also told me that it would be at least 6 weeks to a meeting with the Oncologist.

In fact, the meeting wiht the Oncologist occurred in 2 weeks and she told me a very different story. The plan is now radical radiotherapy with curative intent (see previous posts and profile), and around 3 years of Zoldadex or similar.

The tone of the two discussions was completely different. The oncologist oozed positivity by comparisn.

She needs a better warm up act.

Hi John, I’m pleased you are finding the support you need right now. I’m glad, too, that you are receiving so much support here - just as I did when I most needed it!  I found it so very helpful to hear from people who understood why I was feeling so upset , frightened and angry. 

but … there was another side too! Some of the jokes and light hearted comments reminded me that this is not all a case of doom and gloom. 

I think the diagnosis comes as a massive shock and takes time to come to terms with but I think we learn such a lot about ourselves, our family and friends and our lives etc. I hope we come out of it stronger.  

I hope you’re having a good weekend x

Hi WW. Despite being told I have a curative pathway with Radio/Hormone as one option or Radical Prostectomy as the other I feel very anxious and depressed with the whole experience which man tell me is understandable but life feels so miserable. CT scan clear so nurse said it was good news in so far as I have a curative pathway which was a relief. I will weigh up my options but I'm terrified and suffering with severe anxiety and some depression. I am on 25 mg of sertraline. I took your and others advice to visit Maggies. They were very helpful. I am also waiting for some counselling. I just can't see any positive in the way I'm feeling. I am trying very hard. I can't see a way out of this for me.