Meeting with Oncologist

Hey

Fantastic to hear that the spread is localised and there are no bone mets!

You have a plan now and I hope that eases your minds somewhat.

Praying that the next 3 months goes.well for you.

X

Thank you . Xx

Hi johnam.

That's great to hear that the oncologist thinks it is localised.

I'm very happy that you have got a treatment plan in place now.

Yes I started on Hormone Therapy (injections and tablets) straight away which brought my PSA down within weeks.

My side effects started straight away (hot flushes weight gain and fatigue) mind you these are better than the alternative (cancer spreading)

I have found ways to help with the hot flushes which are by far the worst.

Prostate Worrier.

Hi   My OH. started with bicalutamide and  had his first Prostap injection 25th June . He’s been ok so far other than fatigue  and a bit of weight loss but we’re putting it down to the time waiting to be see . The oncologist agreed it could be  .  He now starts the Abiraterone with Prednosoline tomorrow .  Just hoping he doesn’t have any other side effects . We also have a list of dates when he has bloods done & blood pressure checks . So pretty organised till  October.  

regards 

Liz & OH XX

I am very glad that you have a plan.

Here's hoping that the very exitence of the plan will help with the anxiety.

I have almost the same diagnosis as you do although my PSA started lower at 7.39. My cancer is, however, Gleason 9.

The main difference, I think, is that I have had the MRI scan and the only known affected lymph node is in the pelvic area.

So my plan is 37 fractions of radical radiotherapy, but it 6 months time to allow hormone therapy to shrink both my prostate and the tumour. I can't compare directly, because I have been prescribed Zoladex.

I tried very hard to find out how soon the side effects for Abiraterone start, but the only comment I could find was "within the first few weeks". The same is said of my medication.

There was this https://www.zytiga.com/patient-and-caregiver-resources/helpful-tools/ - which is a leaflet produced by the drugs manufacturer If offers Journal Entries designed to help you monitor the experience.

When I got my plan it felt as if a load had been lifted. I get my next Zoladex injection tomorrow, and I'm looking forward to it, because it is another step in the procedure.

Keep smiling, it confuses everybody. If, when you tell someone that you have prostate cancer (or your husband does) and then grin at them like a loon, you get some really funny expressions.

Hi Liz & OH (johnam) 

It's a plan and things look good - you are on the treatment pathway and have a contact to get hold of now.

Side effects are different for us all - he may well be lucky and not get too many.

Time to relax - sit back, take a breath and enjoy one another's company and raise a glass to the future.

Thanks for keeping us posted.

Best wishes - Brian

Thank you will check out the leaflet xx

Awe thank you Brian it’s much appreciated 

Liz & OH. 

Hi Johnam, good that you now have all the facts and figures and that you have a plan. We none of us get a guarantee of cure so I would not recommend worrying about that one :) The important thing now is for you both to relax a bit and get on with your lives and  enjoy the best of each day . Tomorrow can take care of itself!  Xxx

Thank you very much . Yes I’ve got a glass of vino in hand . We just need to get on with our lives in amid the appointments .

liz & OH X