Setbacks….update

Good morning Goingloopy 

I am so sorry to read what has happened on Mike's journey - I am aware it's hard keeping track with a non-secreter as the PSA level isn't a true indication. It's good news that his team are on the case and I hope further progress can be made once he's had his MRI and CT scan.

I am only on HT/RT myself so I can't answer your question fully but as the forum is busy this morning and you have not had any replies I  thought by me replying your post would be "bumped" back to the top and noticed by others.

If I can do anything for you please let me know.

Best wishes - Brian.

Hi 

I have been on the big three some eight years ago. Now back on it again, except for the radiotherapy, which may come after the chemo.

like all of us on here, we fight to stay with our loved ones, my wife’s watched me being put through a ringer, the stress and strain on her is unbelievable. Then I slipped at the bottom of the stairs, I was really doing good to, now I have back spasms second to none, used all types of pain killers and patches. I know these things take time, just hoping for a little respite.

Battling this thing is half the problem, staying positive is a must, even after eight years, I always say listen to your body, ( in my case it’s gone deaf ) people are there to help, ask them questions if your not sure.

Stay safe

Joe

Hi Goingloopy .

So sorry to hear that you are on this rollercoaster and can understand how you feel as my husband has had 3 recurrences so far in 4 years. It appears that the longer our men are treated with HT the more likely they are to develop the rarer variant prostate cancer mets, in my husband's case it was in the adrenal glands. These were treated a couple of months ago with SBRT and the latest indication from recent MRI's is that it is doing its job for now. I have no knowledge of liver mets but know that they offer extra challenges for Mike. Hopefully it might be acute liver injury which is causing the problem and that once it has settled down he can resume chemotherapy or they might suggest something else. 

Please let us know how you both get on with the tests and what plan B is. Keep positive, we are all rooting for you.

Thanks for the reply Millibob…we’re keeping everything crossed for positive scan results…but whatever happens, we will deal with it…we haven’t a choice after all! Your support means the world….

Hi Alwayshope…thanks for the reply…it sounds like you and your partner are goi g through the mill too. I will update you when we have some news…..it would be nice to get some good news for a change to buck us up a bit. This rollercoaster wears you down, for sure…but your support is very much appreciated and thank you for taking the time to respond. Just knowing others are in a similar boat to us is comforting…..keeping everything crossed your journey runs smoothly from now on too….

Hi Joeven

if you can stay positive for eight years we will do our best to do the same….thanks for your support. It’s a comfort to know others are going through a similar thing and doing ok after years of treatment.

Just added an update…..wondered if anyone else had experienced similar problems……..this forum is such a help