We are just home .
He is starting hormone therapy hopefully today as we have handed in the letter to the GP apparently THEY THINK. Yup they think that the lymph nodes at the bowel is too near for surgery . Not fully confirmed but they will not consider surgery .
They also don’t know if he will receive radiotherapy until we speak with the oncology consultant as again the lymph node is too near and it could cause damage to his bowel . So we are in limbo other than been told he is not terminal . But for how long and I just couldn’t ask in front of him. He thinks that the HT will halt it BUT !! Another shit day as have two faces one for OH .
any help would be gratefully received as last week were were looking forward to him getting surgery on a curative pathway now it’s not .
UPDATE
after having a restless night I called the oncologist secretary to ask if we could have an earlier appointment due to the above post .she was great and although no appointments earlier she has put OH on top of the cancellation list due to our anxieties . She also transferred me to the oncology specialist nurse who listened and then said let me check out everything . OH still on surgical appointment in July but that might change and she doesn’t know why we were told it was doubtful that he wasn’t suitable for RT and he would start it three months after starting HT. she said she was going to double check everything and if she found out something that she could not see at that point in time she would call back later . She gave us lots of information and told us to call anytime even if it was trivial provided contact number . No call back so we presume the info was ok . She was a breath of fresh air today . Thanks everyone for your ongoing support x
Good morning Annieone , you all make more sense that what we have been told . The mind set is different and we are on the different pathway . We had a bit of a melt down last night and this morning but we have both set sights on HT at least stopping this C moving further xxx
A new day brings a new perspective. No I didn't message but if you want to talk then send me a Friend request which you can do from your profile page. I have attached a link as a starter for looking into radiotherapy but try and take a break this weekend and do something you both enjoy. Now that hormone therapy has started you have time to investigate the different treatments and get things clear in your head.
https://prostatecanceruk.org/prostate-information-and-support/treatments/external-beam-radiotherapy
I will second Alwayshope's message.
If you need a chat my message box is always open.
Enjoy the weekend - your journey has started.
Best wishes - Brian.

Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
Strength, Courage, Faith, Hope, Defiance, VICTORY.
I am a Macmillan volunteer.
I tried to send a friend request bu I just can’t find it . Sorry xx
Hello johnam
Here's the " friend request details"
How do I send a friend request?
Here's the "how to send a private message"
community.macmillan.org.uk/.../how-do-i-send-a-private-message
I hope this helps.
Best wishes - Brian.

Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
Strength, Courage, Faith, Hope, Defiance, VICTORY.
I am a Macmillan volunteer.
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
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