Well Ladies and Gentlemen, I have just had my last HT injection into the old gluteus maximus and it's been a very interesting 30 months. I think I have had every side effect going and yet I am fine in myself. My nadir PSA test will be this August and then PSA tests 6 monthly lifelong. Anyone who isn't aware you can read my journey by clicking on my avatar.
I would just like to say a BIG thank you for everyone who has supported me on this journey and also to everyone in the Community for their continued support for others - you all are an inspiration.
For anyone interested we are looking for Community Champions - and as it's National Volunteering week here's a link for you
No I am not leaving - I thought it was time I posted something!! .
Kind Regards and Thanks - Brian .
Wow! Brian - well done for getting (almost) to the finishing line!I assume this last injection takes you up to the 36 month sentence? What a time we’ve both had on this journey!!! I am watching my husband like a hawk to see if I can notice any side effects waning. We were warned it would take 5-6 months.
Yes that's it. 36 months of being a woman (almost). As you say we've both had some journey. I do feel that after 36 months it's going to take some time (12 months?) to fully exit my body. Happy days!!
Kind Regards - Brian.
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
Strength, Courage, Faith, Hope, Defiance, VICTORY.
I am a Macmillan volunteer.
Great news Brian. No more 'Pain in the bum' and well done for lasting the course.
It’s a funny feeling reaching the end of the journey - indeed , if it is the end. It’s one of relief that you can escape the HT but fear that you might have to go back on it! A sort of hiatus or a sense of having and not having (hopefully) cancer, excitement about no more ht and fear of recurrence! Nobody warned us about this ambivalence! I guess the only way that the medics can know if they have effected the hoped-for cure is to stop the HT and see what happens and be ready to step in and stamp on the cancer if it rears its ugly head again.
Ah well - and there is a story - My initial PSA was 182 - there were "spots" on my pelvis on my MRI and my initial MDT meeting said HT for life.
Oncologist "thinks" there may be evidence of a spread to my pelvic lymph nodes so they were "zapped" along with my prostate at Radiotherapy.
With an initial PSA of 182 the thought is it's gone walkabout - but nothing was showing - so it's HT for 3 years then 6 monthly PSA's for life.
All I can do is hope that all is good - I trust my team and am under Christies in Manchester under their new Self Management scheme which is great.
To quote the song by Doris Day "Que Sera, Sara".
Kind regards - Brian.
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
Strength, Courage, Faith, Hope, Defiance, VICTORY.
I am a Macmillan volunteer.
Congratulations Brian. I was on Prostap 3 injections for three years and I reckon it was 9 months after the last one that things started to return to normal. So about 6 months after the last injection had worn off. For you that's about this time next year. Something to look forward to!
Cheers Seamus
That's something to look forward too!! Thanks.
I hope all is well with you - I don't know if I mentioned it before - we rescued another ex racing greyhound in January - Mercury - and he's all black with a touch of white underneath. A gentle giant!!
Kind Regards - Brian.
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
Strength, Courage, Faith, Hope, Defiance, VICTORY.
I am a Macmillan volunteer.
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2024 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007