update on my Prostate Cancer Situation

Hi Ian 

I do remember your original post and unusual situation of biopsy being clear but scans showing tumour(s)

Sorry to hear the outcome but HT can work for many years and there are plenty of different options here.

Perhaps also consider clinical trials like immunotherapy which can be effective with some aggressive cancers.

Keep us posted how it all goes

Best wishes 

Steve 

Hi Ian,

I'm sorry to read your outcome, I also remember reading your post and it was very odd with 2 negative biopsies. What I find so amazing is that there are so many different drugs and treatments to keep things nicely under control. I'm wondering if you will have Enzalutamide or Abiraterone? These are excellent drugs which are often combined with the six monthly injections and they really shrink back and suppress any metastatic activity. They are quite common, but there are others. My OH has Abiraterone ATM and it seems to be working very well. He does have side effects of fatigue, which is mainly from the Zoladex injection (apparently) but this can be counteracted to some extent with a good exercise regime, which is also very good for your  bone strength . Are you taking calcium and vitamin D? (bones) Vitamin C (supports your immune system) something to look into. Give your body something to fight with by doing these extras. Definitely keep us posted on how you are doing. 

Best wishes

L

. 

Barry W

Sorry for the late reply but I've been trying to process the news from yesterday,

I am feeling a lot more positive today after reading the replies to my post and talking to friends and family.

The two drugs you mentioned are the ones the consultant said I would be prescribed alongside the HT.

Hopefully no major side effects from either of them

I am heading out to the Lakes next week for a couple of days to do some nice walks and try to keep my fitness up . (Hope the sun is out)

thanks 

Ian F

Good man.  AW

Hello Ian (IanF )

I remember your original post as it was so unusual it left me struggling for words (and that's unusual!!).

However I am so sorry to read of your diagnosis and in view of whats been said you still have a positive attitude.which is good.  Enjoy your trip to the Lakes, try and keep as fit as possible (fatigue is your new number 1 enemy) and keep us posted.

Best wishes - Brian.

Good man keep chin up,we’re all here for you

Hi Ian,

That sounds great with the lakes trip we always like to go there too. Definitely power up with the exercise it's really made a difference to OH. Also this is something you may want to discuss at your next meeting - Enzalutamide and Abiraterone do the same job, they are incredibly effective but they work in slightly different ways. I'm not going to attempt to say how, because I read about it a year ago, but have forgotten the technicalities. But what I do remember is we were told Abiraterone first if you can get it and then if your body starts to become resistant to it you can switch over to Enzalutamide as it may work well. But for some reason it's not so effective to do Abiraterone after Enzalutamide. So definitely check that with your consultant. If you take Abiraterone you will also have "prednisolone" (steroid) it works against the fatigue, but also very importantly protects your liver from any damage from the drug. Both have different qualities and suit men in different ways, I'm not sure but I think if you have any leaning towards heart problems Enzalutamide is better. When you have a minute look up the side effects of both so that when you have that chat you are well informed with some good questions. Another plus is that you are exactly the same age as my partner and because of this you are able to take the side effects better, naturally you have more strength and less chance of having other issues like heart problems or diabetes. So best foot forward. Fitness and positive attitude, our plan is make it hard for this cancer to go any further and you need to get the gloves on too and give it a good thrashing. Enjoy the Lakes, when the suns out it really is amazing isn't it.

Lx