Hi
Following my partner's 10 rounds of Docetaxyl ( finished November 23), we are now in the recovery period. Latest scan and bloods have shown 5 of the 7 tumours have been zapped and the remaining 2 are too small to know whether they are tumours or scar tissue at present. So, we will take that outcome and hopefully move forward for a while.
However, 4 months on he in his words he ""is feeling worse than while on treatment. Everyday he aches terribly and the brain fog is not improving, sleep is not good. Frustration is starting to set in and although we know it can take a good while to recover from the treatment, we had hoped by now he may feel a bit better. We have wondered if the chemo has accelerated his arthritis, which I know it can do (?). We are interested in other peoples recovery experiences from treatment. We are hoping warmer weather may help, as he is feeling quite low in himself and normally he is quite upbeat.
Many Thanks for any contributions.
I only had 6 rounds of Docetaxel which finished in December.
I haven't had any further scans as my consultant hasn't requested any and is just going from thePSA test level
I ache all over and have trouble sleeping but I was like that before the chemo so that's no real help.
The worst thing for me after treatment stopped was the lack of stamina and tiredness.
I have gone back to regular exercise and somedays it's OK but others I feel completely knackered
I read somewhere that it can take months/years before you feel better and there is no guarantee that you will
I will keep trying though and taking each day as it comes
Hi DancerT , as you will read on these posts, we are all different. The way we handle treatment and our recovery differs vastly from one to another. A common thread does seem to be a fine balance between exercise and fatigue. It is important to push yourself to keep a level of fitness but temper that with not overdoing things. I have found that I can’t do what I could do before RT/Chemo but maybe that is also down to age. It doesn’t stop me trying and occasionally overdoing it.
Let’s hope as you say, the warmer weather brings some improvement. Best wishes, David
Hello DancerT Thanks for your post and am so sorry to read of your husband's problems. I haven't had Chemo so no personal experience however may I make a few suggestions:
* Have you contacted his own GP or your Hospital Chemo team to see if they have any ideas?
* We have a special forum for people undergoing or post chemo Chemotherapy forum You could join this forum and check on the threads or make a new post to ask your questions. To do this just click on the link provided.
* You could put your question to one of our Macmillan Cancer Nurses Ask a Nurse again the link is here. Please allow a few days for a reply as they are quite busy at this time.
I hope the above is of help.
Best wishes - Brian.
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Thank you for your replies. I have looked on the Chemo Forum thank you and there is a common theme of fatigue and muscle aches post treatment. Hopefully, he just needs time and he is working on getting the balance right between doing things v rest. We are returning to swimming soon, in the hope this helps. He had a chat with this GP tonight and she is going to do some bloods to see if anything that needs looking into. She said could possibly be Arthritis.
Hi
Ten sessions is a fair amount, the foggy brain, or chemo brain as we call it, does go away, but it takes time, even now although I still have a bit of trouble. The arthritis no idea where it is, I had it in my hands and fingers, what I had done was two cortisone injections which cleared the problem up.
Sleep is one of the of the after effects of chemo and while having it, your doctor should be able to help there, what I say is listen to your body, when it wants to rest be it any time of the day, then rest.
I presume he’s on hormone treatment, this never helps with sleep, I suffer from restless leg syndrome and take gabapentin for it which helps. I cannot wait for the warmer weather, although sleeping is a hard thing to do when it’s 17 degrees or more at night, I have a fan full blast it helps.
Stay safe
Joe
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