After finishing my sun bed sessions on the 18th October I had my first PSA blood test yesterday morning at my GP surgery. Having read in many posts about the benefits of using the NHS app & being able to see test results quickly I duly downloaded the app yesterday afternoon, & low & behold the result is now showing at 0.09. Telephone consultation with the Consultant (but more likely one of the CNS) on the 30th of this month & next Decapeptyl injection booked for the 12th Dec.
Currently feeling quite happy & relaxed & looking forward to the first ever Doctor Who storyline featuring the Daleks being shown on BBC4 @ 07:30 tonight which has been colourised & may even have a chilled glass of white wine.
Hello Buzzers
That's magic 0.09 - I am 10 months post RT and mine's still going down at 0.438. I would like to catch you up!! Still got two more 6 monthly Decapeptyl injections to go - my next stab in the backside is next Tuesday morning! .
I am so pleased for you - it's been an interesting journey and as long as there haven't been too many side effects from the sunbed and you are over the fatigue that's brilliant.
I love Dr Who and might join you in a glass of wine tonight (diabetic nurse please don't read this as the number of units I told you I drank was right!) however I won't be watching as Mrs Millibob had to hide behind the sofa when she was younger at the sound of the Daleks and she still can't stand them (she's 64!!) I always thought they were great and when they appeared in colour I always wanted to be the Red One!!
Enjoy both the wine and Dr Who
Best wishes - Brian.
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Well done! What a lovely result for you! I hope all continues to go well!
,
Wow that’s fantastic. OH finished sunbed October and bloods arranged for January with oncology week later. Was 0.1 after chemo so would be amazing if he can get something like yours. Enjoy your chilled glass but have to pass on Dr Who - sorry- just doesn’t do it for me . Enjoy xx
Hi Buzzers
It has been informative to read about your journey and excellent progress to date. You come across as being quite relaxed throughout, which is quite reassuring to the reader.
I am still work in progress, but I think and plan ahead. I would be most interested to hear about your HT experience and side effects. I ask this question because this is the element of treatment that worries me the most. I am really very apprehensive about it. I worry about the potential physical and mental negatives. I don't want to go down a level or levels.
You commented on the amount of research you did. Did you ever consider opting out of HT and just having RT?
BW
D
Snap ! I finished radiotherapy on the same day. I have my blood test on 29th November and oncology follow up on the 6th December. Best of luck with your tests and I'll update the forum when I have mine back. Yes definitely worth getting access to your patient record to see test results quickly. Rob
Hello Dedalus,
Everyone always tells me how laid back I am & that's generally true about the way I treat things which has helped me deal with having cancer. It is what it is, & I can't change what's happened so it was a case of getting on & dealing with it & trying not to worry. My husband has been amazing in his support for me throughout the journey although I think he kept many of his fears to himself, but he found support with one of the MacMillan counsellors which helped him cope.
To be honest, I never even gave a thought to not having HT & just having the RT, & thinking about it now I'm not sure I would have taken that option. The fact that the HT stops the cancer from growing by denying it a food supply in itself was quite re-assuring to me.
I may have been lucky with side effects compared to others, in that the main one I have noticed has been hot flushes, but even those haven't been too unmanageable & only last a few minutes each time. Following Millibobs suggestion I have been taking sage tablets which do seem to have helped. No man boobs (yet) & no emotional tears or tantrums. Best of all, no ED which was obviously a concern. I think it may have helped that I have always been quite active & have made sure I kept active & busy throughout treatment.
If there's anything else you would like to know then please ask away.
Wishing you all the best in your own journey,
Kind regards
Brian
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