Surgery or Radiotherapy? Decision made!

Yes - I think so, because the “kitchen sink” part of Jacob’s treatment plan is Enzalutamide.    AW

Hi J&D and AW, my RT was targeted at all my pelvic area, 70 gy as  i was IDC-P with LCP which had spread to iliac nodes left and right, peri-rectal nodes, bladder neck and bowel, and apart from HT the RT was likely to be my one shot at treatment, "though you never know". Had MDT meeting March 19th, Results of RT April 2023, NED bowel and bladder neck, all cancerous nodes shrunk by at least 80% and given 5 more years, happy days, take care.

Eddie

Hi Dafna

I re-read your post and realised you thought I may have PCa spread to to nodes and pelvic bones.  As far as I  am aware, I don't have.  I was classified as T2aNOMO.   Strictly speaking, I believe I am T2c because I also have a tiny focus of PCa on the opposite side of the main tumour.

Dedalus.

Hi Eddie,

This is such great news!! Brilliant

Lots of love

Dafna

Hi Dedalus,

Thanks for clarifying and good luck with the RT. Let us know how its going and any side effects.

Lots of love

Dafna

My RT went quite well yesterday apart from some confusion over when to start and stop drinking water just prior to the RT.  There was different advice coming from different staff members.

Upon asking, I was told that side effects may kick in after 4 to 5 fractions.  I visited the toilet 4 times when I got home, but that may have been more due to the enema.  I went after breakfast as per usual.

In order to avoid urinary pain etc I decided to take a high strength cranberry pill.  This morning I recalled that you have to avoid antioxidants when receiving RT and generally, as it may provide protection to cancer cells.  I did a quick search on the Net and it is confusing.  Some sites and papers advise not to take antioxidants including vitamin D, other papers say that vitamin D may be a benefit during RT.  Now I don't know which way to jump.  I thought it might be of benefit to get others' input on the matter.  WDYT?

Dedalus

Hello Dedalus  It will not be of any help if I tell you my Radiologists said if I have no issues during the Radiotherapy -  then don't change anything.

I was already on no alcohol, fizzy drinks, coffee, and no green leaf veg.

I hope the rest of the fractions go Ok.

Best wishes - Brian

Thanks Brian

I am a tea drinker, and avoid fizzy drinks.  The only very occasional alcoholic drink I have is a glass of cider that has been matured in whisky barrels - lovely taste!

D

Hi Dedalus,

The best thing to do is ask your radiologists at your next session as it's always best to check with them before taking additional supplements.  

I was advised to continue drinking at least 2 litres of water a day during treatment in addition to any other drinks I had to avoid any issues, but also to avoid any fizzy drinks & cut down on caffeinated tea & coffee.  As I love my tea & coffee I used to treat myself to one of each every day & then stuck to decaff.  One of my radiologists was a Yorkshire lass & she recommended the decaf Yorkshire tea & I must admit it's not half bad.

About half way through my fractions I had a bit of diarrhoea first thing this morning & had to rush to the loo twice before leaving for my appointment.  Mentioned it to the radiologists who confirmed it was one of the side effects of the treatment.  They suggested taking Immodium if necessary & one tablet seemed to do the trick.

Hope the remaining fractions go ok for you.

Best wishes,

Brian

Thanks Brian

I need to up my water consumption.