My husband was diagnosed with PC in November 2021. PSA 7 Gleeson 8 . He has just had the final injection of Decapeptyl which he has been having 3 monthly for the past 2 years. He had radiotherapy in April 2022. This month however he has been suffering with severe back ache. I am extremely anxious. Is it possible that the cancer may have spread, even though his PSA has remained low. It was 0.03 at the last test in June.
Hello ZanderW
I haven't got an answer to that question. I think though with the severe back ache your first port of call would be back to your Oncology consultant or at a minimum your CNS. The low PSA is obviously a good sign.
Best wishes - Brian
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Thanks Brian. I have tried to persuade him to go to our GP but without success. He has been so focused on the end of HT and getting life back to normal, that any further treatment would be very difficult for him to deal with. Depression has never been far away during the last 2 years.
Hello ZanderW,
Any new symptom is worrying so Brian is right that it needs to be checked out. Your husband has been on HT for a while and this can cause bony changes which are not necessarily metastases but may cause pain. I expect a CT or MRI scan will guide the professionals to help your husband and they can sort out the appropriate pain management. Also things like physiotherapy or complementary therapies may help in the meantime .
Hello
I suspect your husband , like my own, has his focus very much on the end game - ie HT free. This new development will be causing him huge anxiety and he probably is frightened of receiving bad news again.
The problem here is that back ache can be caused by a multitude of things and not just bone secondaries from prostate cancer. That said, with a history of prostate cancer it would be sensible for him to approach the medics t5o see what their opinion is - if only to put your minds at rest?
I am worried (without any knowledge at all!) that the cancer is being suppressed by RT and HT and once my husband stops the HT the cancer will re-emerge. Perhaps that is a worry for everyone? I do know, though, that there are all sorts of 'jungle juices' out there to keep the cancer in check if it does rear its ugly head again. Perhaps get your husband to focus on that rather than, as I suspect, all the trials and tribulations of the last two years. He has done incredibly well to get this far!!!
I do hope he seeks medical advice and that you can come back here and tell us he's being doing too much gardening
Best of luck!
Watch this video please it will reply all your questions
Thanks Desertfalcon. It is of interest to anyone who has their cancer confined to the prostate and agree that MRI is an effective tool for initial screening purposes,hence the recent news highlights on the issue. The difficulty is that there are insufficient scanners to allow this currently. Surgery was not an option for my husband as the cancer had already metastasised at the time of diagnosis even though this was only 6 months after his previous examination, as he was on active surveillance, and had had an MRI at that time as well
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