Treatment options for Gleason 9

Unfortunately this is treatment not cure.  That said if you react well to the HT it can be many years before they need to think about different treatment options.  There are new treatments coming on-line all the time so I try not to dwell on that too much (although sometimes it can be quite hard).

I am not sure of the specific side-effects of Apalutaminde but in general with HT you can get a lot of fatigue - I reduced my work to 4 days to give myself extra time to re-energise.  There is also the loss of libido - for us that side of life has completely disappeared but it is the price we have to pay.

Steve

Reading this again I think if want to do chemo before tablets that is also fine. The tablets are effective with the main side effects being fatigue and possibly bone density. They buy a year or more of progression free cancer  Once they fail however there is little chance of going back. Whereas there are other chemo options.       

My diagnosis is simular to your husband  (see my profile) because of covid I was put on monthly hormone injections and enzalutamide tablets which brought psa down to 0.007. I agree with everything steveB said the treatment does cause fatigue and hot flushes but I still have a social life. My oncologist said this is a expensive treatment and that I've got chemo and radiotherapy in his back pocket when the tablets stop working. Hope everything goes well for your husband.   Ivor. 

Thank you for your reply. I have read your story. I can’t believe how many men have got PC There are some positive stories which are very reassuring.

I forgot to mention that we have been told that the Ca is curable hence my comment about being offered the tablet.