Hello my friends,
63 years old
Locally advanced prostate cancer
High range and aggressive
Gleason 4+5=9
T3b N1 M0
Broken out into my lymph nodes deep in my pelvis
Please feel free to read my profile. I was diagnosed on 1st September 2020 after having CT scan, Bone scan and MRI scan.
These were done after being admitted to hospital through A&E with urine retention.
A catheter was fitted and the next day I was sent home.just as I settled at home that day the doctor at the hospital called to say that my PSA was 12, six months earlier it was done by my GP and was within the normal range.
I underwent a TURP operation to make urine flow better, at this stage a biopsy was done and every chip came out cancerous.
I was told by my oncologist that in January 2021 I would be receiving Chemotherapy and after a rest period I would be given Radiotherapy, all this whilst having regular hormone injections for two years.
I have always had problems with my Bowels and bladder since radiotherapy.
I can not go out of late without wearing pull up pants and always taking a change of clothing with me.
I recently had cause to call my specialist nurse as I do not have a day wit’s out dirtying my pull ups
(only a little, but it comes unannounced and I do not feel it coming.)
My radiotherapy was to the Prostate and the pelvis.
(My oncologist said that she would throw everything at it)
I went to the GP last week as I was going out of my mind because of the daily accidents with my Bowels as when this occurs on wiping myself I find I have retained a lot of not formed poo.
This is messy and I feel like I smell.
my GP gave me two stool kits, one for blood and the other was a normal test kit.
He called me yesterday (Saturday) saying that both had come back and both showed blood in the stool.
one was positive and both abnormal.
He said he could not arrange a camera check so soon as I am on apaxiban which is a blood thinner.
He said that I would receive an appointment within the next two weeks to be fast tracked to see a consultant to eliminate cancer or any other things that may be going on,and would most probably be given a CT scan.
When I first saw him when he gave me the test He increased my loperamide from two twice daily to 2 x 2mg four times daily.
This was to try and make things more solid and easier to pass.
I am dizzy daily which scares me.
I am so worried at the moment as you may understand.
Any advice (warts and all) I would be grateful for.
i hope that all makes sense.
Spud
”you don’t know how Strong you are,
until being Strong is your only choice”
Bob Marley
Hi Spud - Sorry to hear of your issues. I am not going to be of much help here as your issues are above my pay grade. All I can say is keep on at the GP and your urology nurse as you need some answers.
Yes a CT scan is a must but what is making you dizzy - is it the medication or other issues.
You keep strong pal and remember we are here as a community to help - I am sure someone else will have some answers for you. Keep us posted as to your progress.
Best wishes - Brian.
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
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