What would you do?

Hi Marco and welcome.

Your stats are not too bad. My largest tumour was same as yours 1.3 when RT started.

You haven't mentioned Radiotherapy which is certainly a good option for u and may mean u don't suffer from ED and urinary issues.

One more thing, looks like it has broken through the capsule edge, if that is correct then u could be better off with RT anyway. Do much research to help with your decision. Come back with any further questions.

Best wishes 

Steve 

Thank you Steve, I"m going to see another Doctor Monday.

Sounds like they're saying you are a T3a Gleason 3+3, which is a rather unusual combination. It makes me question how good the diagnosis is. Maybe a point to put to the next doctor you see,

I can only tell you what I did, not even suggest what anyone else should to do. My PSA was 6.4, first biopsy gave a Gleason of 3+3, had MRI to check other area, as a result a targeted biopsy, Gleason 3+4. Long before the result I had decided to have it out. I have two friends who had a radical, one open, one robotic. Both are 8-10 year post surgery and no recurrence or further treatment. It is a personal decision, I did not like the idea of walking around with the cancer inside and from what I found out the side effects of radiation and a radical are not dissimilar, from the radical they can be immediate and from radiation delayed. After the radical, if there is a recurrence, radiation is still an option.  After the surgery the doc told me there was more cancer than they expected to find, it was still a 3+4 though. My follow up us in 3 months, 6 months post surgery. Knowing what I know now, I would do the same again without a doubt.

yes thanks, I will bring him both results, from biopsy and MRI

Thank you, and I hope it all turns out well for you!   Of the two friends, one robotic, one open, do you know if there was a difference, which would be better? 

They are both OK. The one who had robotic still has urinary incontinence to some extent and the one who had open still has ED. I had open and still have urinary incontinence 3 months later. Continue to be hopeful. I used to live in the UK, in Canada now, all three of us went to the same centre, the surgeons are some of, if not the best in the country. Robotic or open, either can be equally as successful, depends entirely on the skill of the surgeon. I chose my surgeon on his skill and experience, rather than the the method. The big difference between the two methods is recovery time, open takes 2 or 3 weeks longer. I had no pain meds after being discharged, was up and about from day one.
Tough decisions to make, I am happy with mine. All the best with whatever you decide.

Thank you and yes, this is a tough decision and so far I have no idea what to do

If it is of any comfort, I don't believe many of us (if any) have any idea. All we can do is research, talk to professionals and any others we know who have been through it. We can only make the decision that sits well with us. Both my friends and myself, after surgery had the docs telling us there was more cancer than expected. We were all glad we had it done, but had no idea before the surgery.

I was apprehensive of the side effects, at times I had thoughts maybe that routine PSA test would have been better left undone, I would have been in blissful ignorance, for a while anyway. It may never have got worse. Then commonsense kicks in,the side effects of having it done were a lot better than the alternative.In a few years, if it had spread, there was no going back. Right now I had a chance to do something and I wanted it out. Pathology came back no spread outside the prostate.

It is tough going though this alone.A forum like this may help hearing different points of view and discussing concerns.

Yes, it is tough.  So far i've only had that one opinion.  Monday I will talk to the other doctor, i've already sent him all my info, i"ll report back what he offers,  thank you for sharing your experience and your friends