Husband waiting for biopsy results

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  • Hi Robina and welcome

    From the detail u have given it doesn't look too bad, at least no spread so assume cancer within gland therefore easily treatable

    Also good that  PSA is near normal. Hopefully Gleeson will come back 6-8, that's if it is cancer,  but even if higher still potentially curable if contained.

    So after your results it will be deciding whether to go for surgery or RT for treatment. Do much research to help with this decision and post here to ask specifics.

    good luck

    Steve

  • Hello Robina

    yes, it is a really worrying time. We went through it in the recent autumn. The worst thing for us was that we hadn’t realised that the MRI is just the start of the diagnostic pathway. After the MRI my husband had to have a biopsy and after the biopsy we were told that a bone scan was needed. We were told the waiting time between each procedure and being told the results was approx 3 weeks. Then there would have to be a multi disciplinary team meeting……. So, what we did was tell the urology staff that we were prepared to take ‘short notice cancellation appointments. This worked very well and we missed weeks of delays. Obviously you have to be flexible to do this but, for us, we just wanted to 8now the full picture and get treatment started asap.

    interestingly, we enquired how much and how soon a biopsy could be done at a local private hospital. By taking a short notice cancellation, it was done quicker by the nhs.

    obviously there are no guarantees!

    Good luck on your journey. It’s not one we would ever choose but we still look for that light at the end of the tunnel

  • Thank you for that reassuring information. The pirads 5 score was a bit of a shock also I wasn’t sure about significance of lesion size of 17mm 

  • Former Member
    Former Member

    Hello Robina, feeling for you as we’ve just been through the same process. Now got to decide what treatment to get as the biopsy came out positive. I’m waiting to talk to oncology about radiotherapy before making a decision. I have been really impressed with the NHS throughout, just not sure what to do next! Any advice or information from others who are going through, or who have been through this process is welcome. It would be good to keep in touch. 
    Good luck,

    Alan

  • Former Member
    Former Member in reply to Grundo

    Hello Steve, I’ve just had my biopsy result and have to decide on surgery or radiotherapy, I would appreciate any help or advice from your experience. Any suggestions as to where to look would be gratefully received!

    Thank you

    Alan

  • Hello Alan

    We are also very impressed with the excellent treatment from NHS.. If my husband does require treatment his options may be limited as other health issues may rule out surgery so decision may be taken out of our hands.

  • Hi Alan, sorry to hear you are on this journey.  My best advice would be to do your own research and get a full grasp of all the facts. Then you can ask for clarification, advice etc at your consultation and understand the situation better.  You will also be able to get your head around the different terminology. You will feel in better control!  I found prostate cancer uk a good starting point for info. Also, MacMillan have a lot of printed info in our hospital.

    we also found the prostate cancer nurse specialist team at the hospital gave us loads of information and answered all our questions as fully as possible and gave us tremendous support. In fact, at the time, they saved our sanity!

    others here have spoken highly of their local Maggies. We don’t have one here! The nurses did, though, but us in touch with a local support group run by a local charity. That, too, was a big help for us. Just being able to talk to others in the same boat is a huge relief!

    I have taken away several lessons so far! 1. We all approach this differently but wives/ partners are affected too! 2. Prostate cancer is diagnosed at different stages of progression and this dictates, to some extent, the treatment options and the decisions to be made 3. If not curable when diagnosed, it is still manageable! 

    others further along their journey can no doubt add to this!

    hth

  • Good Morning Robina & Crouch

    Welcome and I hope you all find the help and support here that you need.

    Just a quick one from me, you can view our individual journeys by clicking on the icon next to our user names - mines the picture of Oludeniz beach. PC is a strange one as we are all different and it affects not only the man but his partner, family and friends.

    Any questions you have feel free to ask - there are may on here with a great deal of understanding of PC and how it can be treated and the side effects.

    Best wishes on your journey.

    Kind Regards - Brian.

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  • Robina

    Pirads is just a number to show the chances that it is cancer. Pirads 5 shows that it is most likely but still need the biopsy results 

    Lesions, My cancer started at 3,mm and went up to 16mm just before treatment.

    So with a 17mm probably time for treatment but as I have said if contained in gland whole thing a lot easier

    Steve 

  • Hi Alan 

    U don't give any stats which would be helpful.

    Generally if cancer is confined to the gland then surgery or RT r both good options.

    Once escaped the gland u could be better off with RT.

    Also take a look at side effects for both treatments as surgery can possibly give u  ED and urinary issues.

    Best wishes

     Steve