Hi all,
I am new here, having been diagnosed with prostate cancer that has spread to the mouth of my bladder. I am 84 years old and live in France. My urologist checked my bones and the lymphs which were clean, and he now wants me to start with hormone and radiotherapy treatment at the same time.
I am frankly scared of the hormone treatment because my wife needs support as she suffers from rheumatoid arthritis and can hardly walk. Firmagon causes so many undesireable effects and from what I have read, it is likely to incapacitate me in being able to drive her to her medical appointments and in driving to shops etc. I have very high blood pressure and even with medication I have a systolic if 170 mg so god knows what it will be when I put more weight on. I am also prediabetic and I have difficulties in walking due to peripheral neuropathy that causes pain when I put my foot down.
I also have low hemoglobin and tiny blood cells so I need a high blood count to keep up my hemoglobin. I also have back problems with the lower disks that cause me to bend forward and make walking difficult. There are other problems such as gammopathy but are probably not relevant.
What I would like to know is can I just have radiotherapy and use my PSA to check progress ( my present PSA is 3.07) even though the gleeson is 7 (4+3) so as to avoid bigger problems with the undesirable effects of the hormone treatment. I am also scared at my age of 84, with further memory loss, heart attack, possibility and mood swings with lack of concentration, as well as becoming weak and tired with muscle loss. If I fall will I end up with broken bones?
Any advice from fellow sufferers would be appreciated.
Thanks Sussex, you experience is very encouraging.
I thought the bone pain lasts a couple of days - can one take paracetamol? I also thought obviously wrongly that the fatigue is permanent and that's why I thought one cannot live a normal life such as shopping etc.
It seems that my main concern is the increase in weight which would drive up my blood pressure, but maybe this can be controlled through exercise. In the end, I don't have much choice if I want to avoid the cancer spreading to the nearby lymph nodes.
Hi
I was on Prostap, but exercise was mentioned as being important. For me, though, it has been difficult especially when I was on both HT and RT.
Stuart
Hi
Yes the initial jab is double strength. I had severe bone pain and fatigue for the two following days. After that it got better and now the only noticeable side effect with the single jab is fatigue on the evening of the jab - so an early night is recommended. I didn't put on weight, but I did up my exercise regime.
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