Hi. Everyone just been diagnosed.

Hi Kate .Glad I have helped even if it was in a very small way and you don't feel so alone..I will be here if you want to chat some more. You could try  contacting some of the professionals on here I am sure they would be of great help to you explainIng all about chemo and radiotherapy.. Hopefully your appointment goes well and your scan shows it not as bad as you think .Take care and remember we are all here to listen and support you .     Pete

Hi Steve thanks for taking time and letting me know of your experience. Once I get my appointment I be able to make an informed decision of which route to take. Glad your treatment went well and you are in Biochemical Remission .Can I ask why 12months of hormone treatment and what were side effects was it injections every month or tablet form.I am due to retire at the end of the year so hopefully will have most of this behind me..Again thank you .     Pete

Pete,

I only had 12 months Hormones as I was a Gleason 7 and not spread anywhere else.  Started on tablets for a month, then a 6 month injection.  Last one Christmas Eve.  Then in February when I was told that I was in Remission the Oncologist told me that I didn't require any further treatment as long as my PSA levels can stay between 0 and 2.  0.09 at the last check in February.

Fatigue was my main side effect, along with my flow of Pee went to a dribble.  It was the effect of the Radiation working on my Prostate and squeezing my bladder.

It all cleared away in time.

Don't regret it for a minute!

Thanks Steve, I found your post really helpful and interesting. I was diagnosed last June 4+5 9 locally advanced (lymph nodes) On Degarelix  injection monthly and Abiraterone daily. Had 20 rounds of RT Feb/March. I have blockage in my right Uterer where it enters the bladder which has caused Urosepsis twice (truely hellish) and going in on Monday to have Nophrostomy replaced with a stent as my kidney blocks and compresses without one or other.

But, your description of what was/is going on after RT is exactly what I’m going through at the moment and, in some way, I found it a relief to read someone els describing the same. 

thanks

Chips

Chips,

Last year I thought I was the only one.  The good thing about this forum is "we are not the only ones".

That helped a lot.  I had counselling sessions through the charity called 'Coping with Cancer'based in Newcastle.  They were and are brilliant.

Good luck for the future Steve.

and thanks

Phil

Hi Kate if you click on groups then scroll down you will see Cancer types forums click on this and you will find the group forum you are looking for . Best of luck let me know how you get on .   Pete

Kate, 

If the members of the Lung Cancer forum are as good as the Prostate forum you should get plenty of good advice and information from people going through the same as you.

This forum was and is a great coping mechanism for me.

I feel like I know more people now with Cancer than without.

I wouldn't wish it on anyone. I originally thought that it would never happen to me. Last year was the hardest of my life. I have come out of it stronger mentally.

In February I was told by my Oncologist that I was in Biochemical Remission. I found this harder to take than the original diagnosis. I couldn't say the word 'Remission'. I called it the 'R' word. I even had the Oncologist calling it the 'R' word. 

Finally, don't apologize for rambling. It's what I do best now.

Hope everything goes well with you.

There's always someone to answer your posts here, even if we don't understand properly.  I'm sure Pete feels the same.

PS: Keeping your login as 'for the life I want ' sounds better.  It should give you hope.

Pete, I have just been reading through the posts.

Apologies for starting my first reply to you as 'Person'.  I did write Petsin but the predictive text thought otherwise.

Anyway Pete is easier to write.

that is fantastic news remission, i have only been offered the first stage, only radiotion and chemo, then nothing, its so nice to here your news, i will do everything now, as i have a bit of hope

Kate