Calcium/Vitamin D

I've been taking Adcal D3 for more than a year. I have had to come off it for a while for Radium 223 and I have to say I'm sleeping better with less getting up to go to the loo.

I think the key is to check your calcium and bone profile blood results but Vit D supplements may well be enough on their own alongside normal activities including getting plenty of fresh air.       

Hi Sussex20, I was put on Alendronic Acid and D3 in February, my bone scans prior showed I had Osteoporosis particularly the hips pelvis and wrist, I don't sleep well anyhow so never noticed any difference, won't be long until my next set of scans to check how I'm progressing, I hope the Radium 223 works for you.

Thank you. I'm still taking Zometa which is administered every 3 weeks -7 days clear of a Radium injection. This is because Ra223 mimics calcium and targets the bone cancer cells. Fingers crossed this will help.  

Ra233 has been mentioned as a reserve treatment should my current faulter, same as chemo. 

Hi Vitor. I was diagnosed end of December and have some bone metastases. My PSA is on the way down with daily Xandi tablets and quarterly jabs of Decapeptyl. Hopefully I'll get it down as zero same as you which would be great news. Cheers. 

Hi Chris your on the same meds as I am, 4 Xandi daily and Decapeptyl every 24 weeks, the lowest my PSA has been was 0.005 now at 0.02, so I'm stable.

If you're classed as incurable, there's a group for that and us guys are way out number by Ladies.

Hi Chris. I was diagnosed late 2018 aged 69. Seminal vesicles were affected but no metastases or lymph nodes affected. I very much hope to be a long-term survivor. I have done a huge amount of research online and made radical changes to my lifestyle. This includes:

Diet: No dairy (very occasional hard sheeps or goats cheese), no less than 6 cups of green tea (prefer Japanese matcha/Sencha) a day (catechins in green tea stop cancer cells forming a blood supply), restricting but not eliminating meat, so a largely whole food plant-based diet - NO unltra-processed foods - always cook own meals and grow my own and try to buy organic; eat mushrooms almost every day (shiitake, oysters etc) - I’m now growing my own on logs! Also, to get calcium in my diet I eat tofu  almost every day (only brands using calcium  or calcium+magnersium salts as coagulants - not those using just nagiri  (magnesium) and I eat loads of brassicas such as broccoli. I may have forgotten a few others! I take vitamins D3 + K2 and B12 as oral sprays.

Exercise: I am extremely active and use a smart watch to measure progress. I have some gym equipment also(treadmill, multi-gym) also.

The above may sound excessive but I am convinced that it is helping to increase my ‘health span’ if not ‘life-span”.

I’m interested to know what you and others think about this.

Thanks Ulls. Next PSA test and Decapeptyl jab for me is in a couple of weeks. Hopefully I'll get down to your level soon. Cheers.

I hope you do aswell, my next Decapeptyl is on the 18th

Thanks Vitor, that's impressive. I already followed a fairly healthy diet, but I'll take on board some of your suggestions. Previously I cycled most weeks and went to a gym a couple of times. I'm 71. My Oncologist told me to get lots of exercise but I've recently developed extremely painful osteoarthritis in one knee which is reducing what I can do. The other issue is tiredness, but I have a physio appointment soon and intend to step up the exercise when I can. Thanks for the advice.