Well after 5 long months after an equivocal bone scan picked up a very small hot spot in my left SIJ, followed by a similarly equivocal CT scan in January and a MRI scan in February the Specalist nurse has just rung to confirm no cancer in bone just an insufficency fracture showing up.
Phew 5 months of worry all over Christmas and New Year and its just a small stress fracture caused by the RT and Hormone therapy .Apparently the bone surgeons want to take a good look at my the MRI to see if there are other problems, well I have had back problems for ever due to heavy lifting over the years I worked. They want to see if there is anything they can give me to strengthen the bones and if medication is needed .I cannot thank the wonderful oncology team enough they are superb nothing gets past them and they are very quick to act .
Apparently my cancer has gone into hibernation according to the nurse in other words remission which is great news .I've been PSA undetectable for 18 months now which is reassuring and I feel very well indeed seeing I was classed high risk Gleason 4 3 5 after prostectomy with spread to local lymph nodes and a persistant PSA that never dipped below 17 after the op it was doubling very quickly and at the time of first ADT treatment had risen to 28 .There is much to be positive about for anyone with advanced Prostate Cancer the consultant said there is now a smorgasbord of treatments available now and more and better treatments are on the Horizon .I was given Enzalutimide as a first line treatment after my prostectomy failed and it is indeed a wonder drug for those men who respond to it .
I hope my story gives some hope to those who find themselves in this situation things are improving on the treatment side all the time .
Hi Thanks for your good wishes.The Enzalutimide reduced my PSA from 28 to 0.02 within one month of starting it ,after two months it had become undetectable and has remained there ever since for 18 months.All my scans and I've had 3 recently bone ,CT and MRI are clear of cancer .For some men who have a type of prostate cancer that is very receptive to Enzalutimide the results are excellent .Not all Prostate cancers have the same type of cancer cells that respond to Enzalutimide, I was prescribed it as a first line treatment after the prostectomy failure due to COVID .This disease is crafty and although under control at the moment I am under no illusion that I have been completely cured ,however the results are brilliant at the moment and I am happy with the treatment I have been given .
Scorpio6,
Glad to hear some good news.
When the Oncologist told you, was it an anticlimax?
On 15th February I was told that I was in Biochemical Remission (as long as my PSA levels can stay between 0 and 2).
I was expecting Marching Bands or at least a big Drum Roll. I couldn't say the word Remission. I even had the Oncologist calling it the"R" word.
He said "You are in the"R" word".
I know a lot of people knock the NHS, but in my case as well, the Cancer teams at the Freeman Hospital in Newcastle were brilliant!
Steve (SteveCam)
Hi Thanks for the good wishes.To answer you question no not an anti climax just immense relief after the scare of a bone hot spot and 5 months before a diagnosis of an insufficency fracture ..I've basically been in remission for 18 months since I started the hormone treatment my PSA was undetectable when I started the radio therapy treatment six months after starting the hormone treatment so mentally I was very happy up until I had the bone scan result then I was very stressed .We all live with the knowledge we are not fully cured as such but to be in remission is fantastic and every day is brighter because of it .I hope we both are in remission for many years to come .My Oncology department are exceptional they are always reachable and helpful the NHS when it's good is superb. However not everyone has such good access or treatment options as many of the comments here proves .I count myself lucky and am now looking forward to the Spring ,my best wishes to you and your family !
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