Advanced Prostate Cancer Chemo

  • 9 replies
  • 171 subscribers
  • 967 views

Hi Lovely people

Hubby was diagnosed Nov 21 with stage 4 p/c.  It has spread to his lymph nodes, pelvis, spine and shoulder.  He is due his 3rd injection of Firmagon next Thursday.  Last Thursday he had his first chemo session.  He has done really well this week, has not been sick at all and not too tired.  I know things will probably get worse before his next chemo in 2 weeks time.  He has though over the last couple of days had pain in his sides and down towards his groin, does anybody know if this usual after chemo?

Ginny

  • Hi

    Welcome to the forum, chemotherapy affects us all differently, usually all the side effects happen the first week, the second is not to bad and the third is like a recovery period, that does not mean there are some after effects.

    You should have a contact at the hospital, give them a phone and just let them know what’s happening. I remember when I had chemotherapy it was like a heat sensation in the groin area, but it did go, but I’m no doctor we’re all different.

    Stay safe

    Joe

  • Sorry to hear about the diagnosis, it must have been a shock. Is he having docetaxel? My husband had 6 cycles a couple of years ago and has just finished 10, but just to agree with joe - it is very individual and the hospital helpline was very helpful the couple of times we rang them. And the first week was usually the worst - we learned to live in 3-week cycles, with fun things scheduled towards the second half of each cycle. Good luck with the treatment

  • Hi Happy Camper

    Thanks for answering me, really appreciate it.  Yes hubbys chemo is docetaxel

    At what stage was your hubby diagnosed, and was he given chemo early doors.  Why has he just had another 10 sessions and is it the same chemo docetaxel

    Sorry for all the questions, but am worried sick that he may only have a few months left as his p/c was found so late on.  Really angry today as he has had a blood test every year for the last 10 years, but no psa was ever done.  We live in France.  He lado has a prostate infection in 2020 and no psa test was done then either.  I just wish I had known about this horrible disease years ago, as then I would of asked for psa to be included in his blood tests.  Sorry for rambling, but in tears again, as I type this

    Ginny

  • Hi Ginny

    Mine was found to late, because I have various things happening I had many blood tests, when it was found after I moved house, they did a test and my PSA was 893. I did my best to have a solicitor to take up the challenge, but was turned down three times, I had all my paperwork from that doctors, to no avail. But that was five and a half years ago, so there’s hope for your hubby.

    Stay safe

    Joe

  • Septimus, my lad introduced me to the book with septimus heap,  loved it. 
    mine spread to ribs, docetaxel, as stated first week worst, about cycle 6 I had significant pain days 4 and 5. Short lived learned to accept it was temporary. I found it good knowing that those where the worst days and it wouldn’t last

  • Hi Ginny,

    my husband is also stage 4 with pelvis, rib spine shoulder and 1 small spot in both lungs. I don’t know how many times he’s been a the dr for every test under the sun over the last 5 years and now we are at this stage. He even spent 4 days last summer in hospital after I called an ambulance for him because he was in so much pain he couldn’t stand up! 
    they still didn’t do a PSA with complicated back pain and slower abdomen pain. How an orthopaedic dr missed it I will never know.

    it’s Prostap and Arbiterone for now but hasn’t been offered chemo. I’m going to ask why not next week.

    thank you for your post.

    louli 

  • Hi Young Man

    Our son’s name is Septumus.  I lost my Dad to cancer a couple of months before he was born and he would of been my Dads 7th grandchild, that was almost 26 years ago.  Thankfully treatment for cancer has come a long way since then.

    How long ago we’re you diagnosed? And at what stage were you diagnosed?

    Ginny

  • Hi Louli

    I try so hard not to be angry as I know it won’t help.  But Sometimes it’s like a wave crashing over me, I scream, I cry and I say what I am sure everybody else says “Why him”.  Why did they not do psa test.  If they had we would not be living on borrowed time, we would be living like “normal” people. For some reason I have been really emotional over the last few days, I can’t seem to stop crying and feeling sorry for all the things we won’t get to do.  Crazy crazy, but this morning we did laugh when I put his thrombosis stockings on!

    Take care, stay strong. And the odd bottle of Chablis late at night when everybody else is sleeping helps too

    Ginny

  • . It’s been three years since diagnosis. After surgery I had recurrent psa which was cancer in ribs, had chemo and on hormone for ever now. No simptons but too late at 50