Extreme fatigue

1. Prostate Cancer UK have a Fatigue Support Service that you might find useful. You can find it on their website. My husband takes Enzalutamide. He hasn't needed the service but we've made a note of it in case things change. He finds walking and keeping active helpful. 

Sorry to hear of your dad's diagnoses Fpo, I had severe fatigue early on when recovering from my operation, starting HT, enzulatimide and then RT. It is hard but my wife dragged me out of bed each morning and I started the day with some exercise which helped massively. I built up from a 5 min walk to going swimming and walking longer distances and now the gym. It sounds counter intuitive but getting moving really helped me. There were and still are days were I just lay and napped on the couch as I have to listen to my body as also needs rest, but with the help of my wife they are few and far between. I also changed up my diet which helped me aswell, I wish your father the best of luck 

Thanks very much for the useful information I really appreciate it.

Thank you much appreciated.

Hi Fpo

I’ve been on a few treatments, chemotherapy, radiotherapy, been on prostap 3 for five years plus, now on still prostap 3 with enzalutamide, at first they gave me four tablets to take daily, because I have diabetes to I was put on metaformin both together sent me into space. 
After contacting the oncologist and diabetes nurse, I reduced both doses. I built up the enzalutamide from two up to four again, the metformin stayed at two, as I take a number of tablets. 
Tiredness and fatigue are side effects you just get used to, sometimes even being lethargic. Getting used to these things takes time, it will happen but it’s better than the other outcome. 
When I get tired which my wife notices, I go for a rest not a sleep, I have a portable DVD player I just watch movies or tv series, ( I have a lot of both ) so after a couple of hours back up and about again.

Stay safe

Joe

Hello fpo, I am on monthly Prostap injections and just finished 6 weeks of radiotherapy. The hot flushes / sweats have been and still are debilitating. One minute boiling hot, next minute frezzing cold. My sleep is disturbed as throwning covers off during night and 4 to 5 visits to toilet. Worn out each morning. Have had to move to spare room as nightime too disturbing for my wife. Radiologist said things should settle after a few weeks. Fatigue is an issue now, my legs feel like lead. Am on a 10 week  course of accupunture for the flushes / sweats but not working as yet after 6 sessions. Taking evening primrose oil too but as yet no improvement after 4 months taking it. Someone suggested sage tablets which I started a month ago. My cancer is outside of prostate, seminal vessels and lesions in ileac bone, which I have had radiotherapy for. I also enrolled for the Stampede research trial and am on Metformin twice daily to hopefully counter the effects of the hormone treatment. I was advised by the researcher that I could have been given hormone patches if I had had only 1 injection, I had 2 when I met her so not able to have patches. My Oncologist has said he could give me tablets in place of injections but he said they aren't so effective. I must admit I am struggling on Prostap at present as on it for life but trying to stay positive for my family. 

Hope all goes well for your Dad, with best wishes Graham. 

Thank you for replying you have been very helpful.  M y Dad has just had his diabetes medication changes so this might be what is causing the fatigue and something to discuss with the consultant.