I've been on HT now for four months prior to RT. At first I found that my night time visits to the loo reduced, but now they have increased dramatically from two to at least five a night. I thought the idea of HT was to reduce testosterone - which it did, down to 0.3 - and shrink the prostate resulting in less visits as the urethra became freer from the effects of an enlarged prostate.
Has anybody had a similar experience? Or should I attempt to see my oncologist (who is very efficient at either hiding or passing me on to someone else).
Thanks all for any replies.
It does change the way your body handles fluids. Many people find that they retain fluid during the day, which often means swollen ankles, and often means that when you are horizontal at night, much of that fluid finds its way to your kidneys.
I'd discuss it with your GP, especially as your oncologist goes AWOL.
- - -
Heinous
If I can't beat this, I'm going for the draw.
Meanwhile, my priority is to live while I have the option.
Thank you, Heinous. I've noticed an increase during the day too, but no swollen ankles, thank goodness! Think I may be suffering from some sort of urine retention but my GP has tested me for any infection and that was negative. A pal mentioned diabetes, so it may be an avenue to explore - as if any of us needed any further avenues of illness to explore!
Hello Jonno, on week 4 of radiotherapy and have had 5 monthly Prostap and now, like yourself, am up 4 to 5 times per night. Oncolgist states this should settle some weeks after radiotherapy.
Doesn't sound great about your Oncolgist 'hiding or passing you on.'
Do you have a cancer care co-ordinator that can liase with Oncolgist? My co-ordinator is excelkent and a great help.
Best wishes, Graham.
Hello Graham, I think if you are already on RT then you might expect a degree of inflammation, and consequent irritation of the bladder or urethra, but the lack of sleep is the killer, I find.
No care co-ordinator - I have an NHS nurse practitioner liason. They are worked off their feet and do their best to solve problems but sometimes even they cannot find out where the oncologist is hiding. I may do a tour of the hospital broom cupboards soon.
I've had the offer of a scan to see if there is urine retention, so maybe that will reveal the cause. I dread to think how many times a night I will be up when I commence RT!
Cheers, Jonno.
Fingers crossed for an infection! Never thought I'd say that!
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