Hi everyone, can anyone help please

Sorry your husband has these issues Catherine. It’s good that his PSA is still low but it sounds like his doctors need to get to the bottom of his current problems. Might be worth phoning the specialist nurses here on MacMillan for some advice. 

Thank you very much. 

Hi Catherine

Usually the oncologist or the cancer nurses ask if he’s had a fall, do they no about this ? Ring them get some answers, tell them about your problem Rather than the doctor which does not seem to help you much, also try McMillan nurses who just might refer him or at least give you some information. I have found the best way is to be a pest. Phone the doctors every day and the oncologist or cancer nurses be persistent, tell them what your going through.

stay safe

Joe

Thank you Joe, unfortunately his Oncologist is back in London and my husband is in Somerset but why the Dr can’t contact her is beyond me. Unfortunately the Dr will not talk to me as I was somewhat straight with him the last time I spoke to him. I will contact the Macmillan nurses tomorrow and ask the for advice and I’m thinking maybe I could contact his Oncologist myself but I’m not sure I’m allowed to do that. 
Catherine. 

Hi Catherine

Yes you are allowed, the doctor should understand the stress your under, ok going to far can bring the wrong results, but he did take an oath to heal people. So phone everyone my wife would be on them twenty four seven if she got no help.

stay safe

Joe

Thank I will contact her in the morning and the Macmillan Nurses here. Something that’s never been mentioned to my husband in over 3 years, a Macmillan Nurse. 
thanks Joe. 

I agree that the macmillan Nurse is a great idea, but doesn't the manager of the care home have any influence?

I'd also either change GP, or write a formal letter of complaint to the existing one. Even though he's confined to a care home, your husband is still entitled to the full range of NHS services - and clearly, he isn't getting it.

Thank you. I have contacted Macmillan this morning and I was fortunate enough to also talk to my husbands Oncology Nurse who has informed me what has to be done. It seems so much has gone on without our knowledge including the Surgery failing to refer my husband to an Oncologist nearer the Care Home. I have to say I’m bloody furious. Now I have to write a complaint to our NHS trust about the Surgery - not looking forward to that as I’m already disliked by the Dr’s there. 
once again thank you for replying. 

Hi Catherine, sorry to read about the problems you are having, the advice the guys have given is spot on, don't worry about sending a letter of complaint about the doctor, just be care full how you word it and include all the facts and how it has effected you and your husbands mental health, the doctor is not a friend he is supposed to be a health professional working to provide the best care that can be given for your husband.

Beat wishes

Ulls 

Hello Catherine 

Your doing nothing wrong, their there to help. The doctors might not like you but all you want is a service which they should provide.

The main problem with different departments at hospitals, they seem not to talk to each other, I’ve had it happen many times as I have to visit many different departments for checks and scans etc. But as long as you tell the oncologist team it’s all there on the computer to see. 
stay safe

Joe