Hi everyone.
Posted on here a year ago when diagnosed with PC
Finished my 37 doses of RT and now coming up to my 2nd year of HT with zoladex. Had it for last year at 3 mthly intervals with on fairly hot flashes occasionally. Been very lucky so far with no other side effects with the exception of testcal shrinkage and loss of libido, but hey I'm 64 this year, married but we both accept that. I am on HT for 3 years(2 to go) possibly longer. I'm quite happy and for some reason I don't think about PC much. It's like I don't feel I have it so I just carry on. I mean it doesn't upset me. Why? I don't know. Does anyone else feel like that? However, I am now getting lower backache which has been progressing over the last two weeks, more so early evening it starts and when I first get out of bed. Is this the start of a newer side effect of the zoladex? I read nearly all your posts and feel for everybody on here and realise some suffer badly unfortunately. I pray everyone will get better or at least go on for many years to come comfortably. All the best to you all.
I don't think the backache would be directly Zoladex-related (I don't see how that would work), but with prostate cancer, backache has to be taken seriously.
On the other hand, there are plenty of other possible causes, and you need to consider any past history of back issues, any new activity that might have set it off, whether your sofa is sagging more than it used to, whether you are putting on weigh and/or are less active than you were ... and whatever else comes to mind.
Think big picture, don't assume anything, but if in doubt, discuss with your GP and/or specialist nurse.
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Heinous
If I can't beat this, I'm going for the draw.
Meanwhile, my priority is to live while I have the option.
Looks like I'll have to see GP when I can. I wondered if because I had osteoporosis for many years which has gone down a bit to osteopaena, although I still take zomorph pill twice a day to keep pain away I read hrt zoladex one side effect is onset of osteoporosis. Wondering if it's had an effect on my spine and made it worse again. Here's hoping not. But I'll need to prob ask for an mri again to check.
Thanks Heinous
Hi gaz61
Thks bud. My gleeson was 9 and psa was only 8.8 but doc sent me for check thank goodness. Turns out it's locally advanced and aggressive. Unfortunately after the biopsy they also found it to be in 4 nearby lymph nodes. Good luck with Yr remaining r/t fractions. After the 3rd week it goes quickly. Guessing you'll poss be on hormone therapy too for a while if you're having 37 sessions like I had.
That history, especially with osteoporosis, it's a different story:
Deffo contact the GP Asap. Wouldn't hurt to start taking calcium supplements if there's a delay. With that history, you probably should have been offered them from Day 1!
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Heinous
If I can't beat this, I'm going for the draw.
Meanwhile, my priority is to live while I have the option.
I'm quite happy and for some reason I don't think about PC much. It's like I don't feel I have it so I just carry on. I mean it doesn't upset me. Why? I don't know. Does anyone else feel like that?
Yes. Me. And I don't know whether it's good thing or not. I was diagnosed over four years ago. Had the da Vinci. Doc told me he hadn't got it all out so I suppose it will return sooner or later. I don't know whether I am in denial or just able not to obsess whilst in remission
I know I've been lucky in that it was caught quickly and hasn't turned aggressive.
Good luck
I was diagnosed about 6 months ago when I thought I'd pulled a muscle in my shoulder, even cancelled a Dr's appointment because I thought I would be wasting his time. After an xray and a blood test I found I had psa of 50.. Still not sure how far up the league table I am with that and cancer on the bones.. Not long had a chat with a Dr who told me over the phone I had spots on my lungs, even asked me if I wanted to swap hospitals and waiting for the chat after the biopsy.. I am a fairly confident person especially after beating a rare bladder cancer, but the mental strain is tough especially with covid holding everything back. Had the 6 month hormone jab, getting the sweats but finding it difficult not knowing what to do. My good wishes to all suffering
Stay positive loads off different treatments out there i am at moment half way through 37 fractions off radiotherapy no pleasant but we plod on good luck and you ill beat it
Hi Norfolkboy
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