Advanced Prostate Cancer - Treatment choice

Hi Mothman, Had my most recent appointment with  the Oncologist on Monday just gone, unfortunately Abi does not seem to be doing its job as PSA is still rising and further Mets to my bones and possibly other places although they cant be sure of that. I have now been given two choices, Chemo or Radium 223. Oncologist recommends Chemo as he cant be sure it hasn't spread away from the bones and Radium only treats cancer in the bones. Cant say it is any easy decision to make but it looks like Chemo and that scares the hell out of me, some of it just vanity has thought of hair loss and looking like Kojack doesn't make me happy. I was just wondering if anyone else reading this blog has ever heard of or even used Oncothermia as a complementary therapy alongside conventional treatment.

Hope your Enzalutamide and Prostap works better for you, Good Luck.

Nick

Hi cnsmer. Sorry to hear your Abi isn't doing the job. I gather that Chemo isn't as severe as it used to be but is still a challenge. I think Kojack looks OK though. I don't know anything about Oncothermia so cannot help there

Doing OK on hormone therapy but it has only been 6 weeks. Keeping my fingers crossed.

Best of  luck

Pete

Hi Mothman and everyone else on this post,  My Chemo starts on Tuesday 20/04 and will possibly run for a total of 10 (30 weeks) cycles, still not looking forward to it but am trying to stay positive although i do still have my dark days, mostly when i see my young granddaughters, and now i need to stay away from them as much as possible to stop the risk of infection. Have also been told not to play walking football  (my passion) whilst on Chemo due to risk of injury, but i can cope with all that. I have even bought myself a couple of flat caps so i can hide the Kojack look  from everyone, although one of the granddaughters thinks i will look good, or even like a thumb. Mothman hope you are doing well on your treatments and the P/C is being held at bay.

 Just wanting to know if anyone has used Oxygen therapy or Infrared Sauna's whilst on Chemo

Everyone stay safe and keep fighting, eventually we will win this battle.

Good luck to you all.

Nick

Hi Nick

Some people get through chemo with not much in the way of side effects, have you been told what to expect ? I could run through what my six sessions did to me, but rather than that, the first is the worst first two days not bad then it hits you, the good thing it gets easier as you carry on. 
You must remember your blood cells will be low with chemo, a cold a cough, kids carry all types of disease which is harmless to them, but deadly for you. I know I got sepsis after my third session, my temp went up to 38 plus and that was me in hospital.

I cannot stress this enough times to any one starting chemo check temperature morning and night, want a drink pomegranate juice any fish or white meat, whole meal bread or cereal, red grapes, try to lay off dairy or sugary items gives you the runs. 

Sorry to be so blunt it’s bad enough with covid.

Chemo is a great way of bring cancer to heal, just see a light at the end of the tunnel and you’ll have years to come, I’am incurable and still here nearly five years later.

Stay safe

Joe

Hi Joe,

Thanks for your prompt reply. I have already altered my diet from being a Veg is great as long as it has meat on the side to being love meat but prefer Fish and veg etc now, have left meat mostly behind now, do have meat alternative though ie, quorn etc.  Drink Pomegranate juice and fresh carrot juice, and dont use sugar although still on Stevia at the moment and occasionally Honey, use dairy free milk ( soya, almond) and still on some supplements, Vit d3, Cod liver, pro biotic, would be nice to know if any supplements are better when on Chemo.

Thanks for being a positive person and giving some great advise to the reat of us, if i can keep as positive as you i'm sure i will be fine.

Cheers

Nick

Hi Nick

 There’s only one supplement missing that’s pomp-t  you can look it up on the net, some people rave about it, supposed to help kee your PSA down not cure just help.

stay safe

Joe

Hi nick 

Thats pomi-t

Hi Joe, 

Thanks for that, have you used Pomi-t and if so did you use it during Chemo.

Nick

Hi

I have used Pomi-t for four years, the one thing you never know is, is it working ? I took mine after the chemo but it’s all natural ingredients. 
joe

Hi Joe and Nick

Thanks for all your comments and information. All useful.

I am now into my 8th week of hormone treatment and PSA has dropped to less than 0.1. With Xtandi (Enzalutamide) I take 4 tablets, once a day. To start with I was taking them at 8:30 pm as it fitted in with other non-related medication. However I found that I had bad nights sleep due to hot flushed and restless legs, both common side effects.

I noticed though that if I went for a nap in the afternoon I had much less effects. It turned out that I was getting the worst of the effects about 4 hours after taking the tablets and that they calmed down over the next 4 hours.

You are supposed to take them at the same time every day but it doesn't matter when, so I have slowly moved the time to 3:00 pm. This works much better for me as I can regulate my temperature and move around in the evenings without it interfering with my general routines. Most importantly the impact on my sleep is much less. Mostly I get a good night.

In other words I am now very pleased with how things are going.

Pete