My Peritoneal cancer

Hi Elsie mo and a very warm welcome to the online community

I had a different type of cancer but I do understand all the worries that having a cancer diagnosis entails and also how hard waiting can be. Did the MDT discuss your case yesterday and do you know what treatment is proposed yet?

It might be an idea to start a new post with the subject title something like 'worried about injecting Fragmin' to catch the eye of those in the group who may be able to tell you about their own experiences doing this.

It would be great if you could pop something about your diagnosis and treatment into your profile as it really helps others when answering or looking for someone with a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

x

My goodness what a roller coaster ride you have been on. You must of been so pleased to actually see and talk to someone face to face. Wishing you all the best.

Hi Elsie mo

Yes, it was a relief after 15 months of telephone consultations to finally see someone again.

Your reply to me has reminded me to update my profile with the news that everything was okay. Phew!

x

Welcome Elsie mo! I expect by now you will have heard the outcome of the MDT?  I hadn't heard of Fragmin so had to look it up... I'm now on daily anticoagulants (but tablets) after a clot on my lung was found by the scan after the last cycle of my chemo in March.  Clotting is a side effect of both cancer and it's treatment and now that has been brought home to me quite strongly!  So if they think Fragmin is needed to stop that....?  It's def important to avoid clots in legs, your brain or your heart!!  Injecting yourself can be scary....I did it after each cycle of chemo to boost my immunity during the CV crisis...and I just told myself it wouldn't hurt that much and it didn't  The thought is worse than doing it   Think of all the diabetics that inject insulin often  

Good luck on your journey....this group is a supportive one  Do keep checking in because we'll be wondering how you are 

Hello newbie.

Thankyou for you encouragement. I've had all the details from the MDT and it was as I thought. Grade 3 fast spreading peritonial cancer and stage 3 serous carsenoma ovary peritonial origin.    I will be meeting the team this coming Tuesday and start Chimotherapy at Valindra hospital on the 7 th. Three cycles to start with,  three weeks apart. CT scan and blood then surgery, removal of ovaries, falopian tubes, womb and neck of womb and omentum caking. Generic testing for brca.  Followed up with another 3 cycles of chimotherapy and all that entails. 

I feel like a leaf floating in the river. Being taken by the flow, all the twist's and turns and not knowing where I will end up. 

You were right about the Fragmin. I'm getting used to it now. And your right again there are thousands of people doing exactly the same at the same time and that's a comfort. 

I hope you are keeping well. X

Hi Elsie Mo, 

Are you being treated in Velindre Whitchurch? I have been diagnosed with PPC in June and my surgery is in September. 

Hello zebaish. Nice to hear from you. Yes I'm being treated at Valindra Whitchurch. My fiirst appointment for clinic is on Tuesday. I was expecting to start chimotherapy on Thursday but now delayed until 7 th.

I'm guessing my surgery won't happen until November time. 

Have you had chimotherapy?

I first went to the GP in February and it feels a long time getting here to this first clinic appointment. 

We may bump into each other and it would be good to say hello.

Very good luck for your surgery. I really can't wait for mine. 

Hi Elsie Mo, 

Nice to hear from you. I had 3 rounds of chemo, followed by scan and my surgery is next week.  I am being treated at Velindre and UHW. It would be great to bump into you. 

Good luck with the chemo. 

Hi zebaish. 

I'm sure you must be feeling anxious and a bit nervous about your surgery. What surgery are you having.... It's ok if you don't want to say. I understand my surgery will take place at the Heath but I don't know when. How long have you waited after your last chimo session?

Do you live close to the hospital?

Do you have support?

Oh dear I'm just full of questions. But if you need anything and if I can help in anyway I would. 

I would like to keep in touch with you. Please let me know how your surgery goes. 

I will think of you and the very best of luck. 

Hi Elsie Mo, 

Thank you. 

I am quite nervous and anxious about surgery but keeping myself busy and trying not to think too much about it My 3rd chemo was on the 12th of August. .

I'm having the debulking surgery on Thursday. They will do a hysterectomy, remove tumours on the omentum, peritoneum, and anywhere else where the disease is. 

I have a very supportive family and live in Pontprennau. It would be nice to keep in touch and support each other. I am also full of questions and got alot of support  from following a few women on Instagram with PPC.i am so glad I found you here. 

Good luck with the chemo, keep strong.