I started niraparib on Tuesday and wondered how long it takes to get into your system and make you feel "normal". I'm having trouble sleeping. Can get to sleep ok but if I wake it takes so long to fall back. I'm so tired and can't handle this forever...
Hello everyone. Just back from biopsies today ( have to wait 5-10 days for results) but the dr said it presented as cancer. My CA-125 result ( done a month ago) was normal though ….is this possible with primary peritoneal cancer? Many thanks for any info...
Hi, I went to the docs after a few weeks of increased weeing and latterly a bit of bloating and discomfort. I didn’t delay too long at all. I was told on Monday I has a prolapse and after an examination, was told there was nothing to worry about, but...
Hello there, My wife was diagnosed with PPC stage4b in June this year. So far she has had 5 rounds of chemo and debulking surgery, she has one more session of chemo and then will be going on to Olaparib (2 years) and bevacizumab (1 year) maintenance...
My friend has been diagnosed with primary peritoneal cancer stage 4 and waiting for the Cytoresuctive surgery after 4 chemo. Has anyone had cytoreductive surgery for stage 4 cancer? How did they cope after removal of various organs? Whixh organs were...
Following my treatment for Pseudomyxoma peritoni that included CRS and HIPEC where I was told the result was excellent, I have been unable to have a bowel movement in 15 days!! I have been given endless movicol, now changed to Laxido but still nothing...
Finally an appt. I'll be seeing Mr Samuels Has anyone seen him for peritoneal cancers? I understand this too is an assessment appt. Does anyone know what this entails ? ECG I guess. What else ? I'm much relieved, but obviously the prospect...
I have my MOAS and HIPEC surgery ok 2nd October in Basingstoke. Please can anyone who has already had this operation - let me know how bad you feel afterwards and how long it has taken you to recover?
Are you on a shared ward or do you have your own room at the Peritoneal Malignancy Institute in Basingstoke please?
When I was diagnosed with PPC I opted for gene test and the results is I have I have inherited the Chek2 Gene.. has anyone else been given similar news? Its not easy passing on this information to family.
