I had an upper abdominal ultrasound 2+ Months ago. This showed peritoneal and omentum cancer.
I then had a colonoscopy which was clear.
I was then given a request for cancer marker blood tests and a CT scan
The CT scan was inconclusive for finding a primary cancer.
My Ca 125 blood test was low at 83.
The report said it was probable gynaecological primary cancer.
I then had a gastroscope which was clear.
I had to wait again for a PET scan.
This confirmed again that I had peritoneal cancer that was “probably caused by a gynaecological primary cancer”.
Now I am waiting for a CT scan guided core biopsy of one of the peritoneal cancers.
I have also been referred to a Gynaecologist with advanced laparoscopic skills - who is over 300 kilometres away.
I am now wondering if I have primary peritoneal cancer.
My Mother died of Peritoneal Mesothelioma and have discovered that there may be a genetic link.
I am really worried and frustrated with waiting for each scan and test.
