Back on chemo

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I have written elsewhere about how well I thought was doing. However about 6 weeks ago I realised things weren’t quite right. Mainly due to a hernia I developed after the debulking operation. Anyway up shot is I had a new picc line inserted on Friday and it is back to chemo tomorrow (Tuesday). It hasn’t upset me too much as we were told right at the beginning this might be the pattern. So just as we are coming out of lockdown I will need to be careful as my immunity will be reduced. For all of you having problems with sickness, pain or not being sure what is going on then my heart goes out to you. Take all the help you are offered. It helps others around you to make sense of things.

FormerMember over 3 years ago

News like that must still be a shock I imagine, even if you are expecting it..... and yes, when everyone is looking forward to more mingling, how frustrating it must be that you'll need to restrict your contacts again: especially with spring finally making an appearance. I expect that you will have had the CV vaccination but of course there are other infections too!

As someone just approaching the end of my first round of chemo, I'll be keen to be asking my oncologist just how they will pick up when things will start to go awry again (as they must): I'm a bit wary of it being down to me when my body hasn't felt like it should for SO long!

I expect that you are feeling rather less than your best after your first treatment yesterday. But you know to be kind to yourself and I hope all goes smoothly. I'll be thinking of you and wishing you all the best x

Grammar over 3 years ago

Really sorry you are back on chemo.

we all know it’s a rollercoaster ride with lots of ups and downs. I am also, like you back on chemo. My 125 had risen so had a ct scan last week, saw oncologist yesterday and told I have a small mass on the right hand side of my abdomen. I was taken off avastin last year and have had no treatment for 12 months, I was diagnosed 18 months ago. During the 12 months I have been really well, lots of walking, decorating and feeling quite fit. Was looking forward to Covid restrictions relaxing and hoping to enjoy this summer.

I have my first chemo 12th March, not looking forward to it, but have to keep positive, and won’t give up the fight.

for those just starting this journey all I can say is keep a positive outlook, it has helped me, it’s not easy but you can have good times when you are feeling well.
and newbie don’t worry about monitoring after your chemo, I have been checked on a regular basis and my specialist cancer nurses have been wonderful, if you have any doubts speak to them about any query you may have.

FormerMember over 3 years ago in reply to Grammar

Thanks Grammar. I have chemo treatment (6th and last for a while.... ) on the 12th too Snap!!

I do so agree the nurses are all fab Mine has been great and very patient with all my questions.

Most of all I wanted to say, it's so lovely to hear of people like yourselves who have enjoyed as much as a year treatment free. So thank you for sharing that And that you were so well

Good luck on this next phase of the rollercoaster Time to buckle up and hang on in there. Let us know how you get on I'll be thinking of you xx

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